DCAPDEVI
Hey sweetie! Popping in to say hello and see how you are doing. I've started seeing a new pain doc. definitely not pain free (but who expected me to be?) but we have gotten to a bit of help. How are you faring? Have they gotten you a regime that keeps you more comfortable yet? :-/ I hope so. *hugz* 2193 days ago
DCAPDEVI
Hey sweetie! So sorry to hear your comments :-( Did they consider interstitial cystitis in regards to the UTI? Pancreatitis? No stones but bile draining slowly... that's gallbladder not pancreas. Gallbladder issues usually hit under the right shoulder blade in the back and wrap around front. They can be excruciating! Been there, had mine out in 2009 due to 4 months of not being able to eat anything and having pain constantly! Pain with meals, especially regular to higher fat foods set it off due to bile being responsible for digesting fat. The fat molecule is all curled up on itself and unable to be digested. The bile hits it and causes the fatty acid chain to stretch out allowing you to break down the molecule and therefore digest the fat. Slow gastric motility - I have that, it's called gastroparesis. I am not sure WHY I have it, it got passed off a lot. New GI doc is investigating. So far he's discovered I also have Crohn's, which causes severe lower abdomen pain and stomach pain for me. For that stuff, i would seriously recommend finding a good GI doc who can look at everything and piece it all together. Mine has also informed me the Crohn's can cause arthritis :-) See? NOT all in my head!!! :-)
The ortho neuro stuff - is the adhesions causing the arachnoiditis? I am not very familiar with that. What I can tell you, from a pain management perspective, is that if your pain is due to inflammation, you will get better pain relief if you are taking an anti-inflammatory to decrease the inflammation. Morphine is a central nervous system acting med. It blocks the pain signals, like a mask. The anti-inflammatory will decrease the inflammation contributing to your pain, take that out and the morphine will be way more effective. Be careful with NSAIDS since you have GI issues. I can't take them anymore. I have added in Omega 3-6-9, Co Q10, and Astaxanthin supplements, in addition to a good probiotic and Kefir. I also tried a stint of Alfalfa, but be careful with that. make sure it's Non-GMO, organic, all that good stuff otherwise the plant proteins don't function properly. Also, some people have difficulty with it due to autoimmune disease and Vitamin K content (for example, my mom is on Coumadin and did not feel well on it because it increased her K intake and the Coumadin and Vitamin K have a relationship).
I am so sick of hearing about "Drug rehab" for pain patients. I saw one doc in August who flew in like a bat out of hell and get this, her response after a BS exam was, "You're too young. Narcotics aren't the answer. I wish I could help you. Sorry!" Really?!?!?! I never asked for drugs, I asked her to make my pain more tolerable. I told her if a cartwheel will make it go away, BACK UP. I'm gonna do a cartwheel right now, but it won't be pretty. So now I am at another spine doctor. HE seems awesome. My doc referred me for my lower back. i told him about my history of hyperreflexia and clonus and he stopped the exam, looked at me and said, "That's not normal at all. Especially for a low back." So I said they ruled out a cord compression 6 years ago, I have discs in my neck and thoracic, nerve issues at C6 and L5. He looked at me and said, "I need to see your scans. This might all be coming from your neck..." So I am in the waiting stage while he reviews it, but I am trying to stay hopeful and positive. My pain is consistently 7-9 every morning and the docs won't give me ANYTHING. I am stuck on 4grams of Tylenol a day and worried about my liver. I have an appointment Thursday so hopefully, the doc will take pity on me. I am bringing my mother :-) She's pissed, lol.
I know you're not a hugely spiritual person, but I will keep you in my thoughts and continue hoping you find relief and comfort. Even if you don't believe in God, what could me praying hurt? Can I add you in while I mumble at the divine? :-) *HUGZ* 2310 days ago
DCAPDEVI
Hello Kimberly! I haven't been on in a while, but I am trying to get back on the wagon and catch up with things this week! It's my New Years Resolution of sorts - figure out where life ran off the rails and try to get back on!
I have never forgotten about you. I wonder how you are doing. I popped over to check on you. I'm so sorry to see the new diagnosis :-( With it, do they have new ideas on how to make you more comfortable?
I haven't gotten very far with my back issues, silly US Healthcare system and all. Oddly tho, I had a GYN issue that I had surgery for, and the back pain is not as deep set as it was. Weird. Silver lining :-) I'll take whatever comes!
*hugz* and hope you have something to smile about today! 2470 days ago
WOW hon, that sounds soooo promising to try !! I hope the Dr's in the US cn do this,,,, and that you get to try it. Sounds like as ur body fights it, you get sicker, as it's fought thu (My GS has gone thu this with a disease that only 2 in the US have,, for the life of me,, I can't think of what its called) but fortunetly he /we moved to CO and he saw a phumenulogist SP?? a lung/breathing Dr. turned out he has a very rare cond that only 2 in the US have,, its caused actually from arthritis and it attacks the spine, which becomes irratited,, SP? LOL I do not tonight care bot spelling,, can ya tell? LOL !! But once his spine is attacked,,, it bulds up fluid in his lungs,, which have,, no joking almost killed him 51 times,, this has been happening since he was 1,, he's now 22. YO !! THANKFULLY last yr they discovered the Embrel works. We are amazed of course.
I need to lay back down,,, so I'll keep this short,, for the fur bag I own,, LOL Izzy Ma Gizzahs,, a brown tiger/LeMar(A LaMar is one with almost dwarf legs,, making it very hard to JUMP UP On things,, a PERFECT cat to have !! Their fur is very thick and on the course side,, and also they ALWAYS put their paw on ur face when they are at all laid backwards). She's such a sweetie. I do love the little goober a lot.
I m now soooo hopeful that you can find something to help you out !! That'd be sooo neat !!! What are ur symptons? 2471 days ago