Doctor's Orders Oppose all Spark's Mandates!
Saturday, December 17, 2011
I visited a nephrologist this past Thursday (yesterday?? Seems like a long time ago!) because in recent bloodwork my sodium level, which should be at 136 to be healthy was at 117--a point at which seizures and worse can occur. Because of this, my elbow surgery which was scheduled for this past Tuesday was cancelled (for the 4th time! ) by my GP and this time permanently. He decided that it had reached the ridiculous point after all of the medical hold ups (extreme uncontrollable HTN for example), that it was not going to be safe for me to undergo general anesthesia in any event and so he cancelled the whole surgery. He said to me "Because it is of a somewhat elective status, we can't take a chance unless it is absolutely necessary." Well, if you ask me reducing the current screaming pain in my elbow IS absolutely necessary! But I guess we don't see eye to eye on this one and me being the lowly patient: I lose.
So anyway back to the nephrologist. He told me "Eat as much salt as you want or can stand and do NOT DRINK any water...! Maybe a few sips to get your food to go down...but nothing more!." This to a person who regularly consumed several liters per day beforehand. Well, I agreed to try and cut back. And I have...to about 2 16 oz bottles a day. I can't honestly imagine drinking less than this. Granted I have days when my body seems to require less but on a high need day...that's the lowest I can do. I understand the logic behind the doctor's mandate: the less fluid in your body, the more concentrated the sodium left behind. The more fluid, the more diluted it becomes. But you know, I just cannot convince myself that having skin dry as paper (as mine is now) and a tongue that absolutely is stuck to the roof of my mouth due to lack of saliva, can be good for anyone. It would seem to me that the risks of such foolishness would far outweigh the benefits. And this is a way of life they want me to continue.! Lke FOREVER!
Sorry doc, ain't gonna happen. I have chronically low sodium , and while it has never been quite this low before, I've never had a seizure or a hallucination due to it. And I'm not worried about it now. The other option is to stop taking the mood stabilizer Trileptal, which is the only drug to have successfully stabilized me for the past 5 years (along with some others) This is the drug which can plead guilty for causing my low sodium levels. The thought of trying to be weaned from it is tempting...surely there are others to try. I will talk this over with my psychiatrist next time I see her. I'm sure, should i suggest it, my husband will hit the ceiling. But you know what? Let HIM try to drink this little or go without really necessary surgery...and then we can talk.
I know I will get mixed comments on this blog. There will be those of you who support natural medicine and who will oppose the doctor's orders as I do...and those of you who will rebuke me for disregarding the doctor's orders....but I really feel that I'm doing the only thing I can tolerate; the ony option I can live with .