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EDS???

Monday, January 23, 2012

So, on the 19th I went to a Rheumy for the first time for RA. The doctor looked me up and down ran blood test and Xrays and then told me I don't have RA but instead something called HEDS (Hypermobility Ehlers-Danlos Syndrome), and I also had to refrain from running and squatting because my knees are to weak and could brake under the pressure. I now have to wear knee braces all day, but I thought, this will be fine I can do this at least I don't have to wear them to bed. Friday the doctor calls to let me know I have to wear a wrist brace at night because my right wrist is worn out. WOW! I felt defeated, Like I couldn't do this.

I told my Mom about what the doctor said and that it was genetic. My mother had no idea what it was so I email her a link about the disease. She IMed me back and told me that my Dad just informed her that he had it. I had so many questions. It turns out when my Dad was 25 he had broke his right knee ( just went out while he was standing) so had to have surgery and they found his ligament were loose so tightened them and sent him on his way. When he was 26 same thing happened to his left knee, that is when the ran test and found he had EDS. My dad never thought twice about it and hasn't been to a doctor since, he didn't even tell my mom about it. She knew he broke his knees but he had always had knee problems.

I now go back to the doctor on the 16th of February to talk more about my option and I am scared it will slow me down in my weight loss. I am just hoping I don't run to the end of my rope and there be a wall standing in my way.

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Member Comments About This Blog Post
  • RASMOO
    Sure hope your doctor appointment went well and the news was good. If this slows down your weight loss then it was meant to. Maybe your body is trying to tell you it needs rest. And you can look for exercises that won't put such a strain on your knees,such as water aerobics. Here's something I received from a kind friend and I'm sharing it in hopes it will cheer you up.

    You are the recipient of the Beautiful Woman Award!!
    "Once you've been given this award, you have to paste it on the page of 8 women who deserve it. If you receive more than 3, you know you're really beautiful! If you break the chain, nothing will happen, but it's always good to know someone thinks you're beautiful inside and out!"

    emoticon
    3300 days ago
  • STPHID89
    Thanks, that means a lot to me. I will be sure to post what my doctor wants to do to me after the 16th. :)
    3329 days ago
  • WEIGHTSLAYER2
    Never feel defeated.. you can do it! because you're amazingly strong and such a great person! Here's hoping for good news! Let us know how it goes! Keeping you in my prayers xxx
    3330 days ago
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