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Trip to Rheumatologist

Thursday, June 06, 2013

I went yesterday back to see the rheumatologist who had diagnosed me with Psoriatic Arthritis back in 2008. This is my fifth official year of having the disease and it has all but completely crippled me in that time. The doctor who is a lovely man from the Islands, tested and examined all my joints. He clucked his tongue and shook his head....numerous times repeating "You are very very bad." He told me he was going to do bloodwork and xrays and then wanted me to come back in three weeks, because "We have to try to help you." He told me that very very soon I will have zero quality of life and that my muscles would all be destroyed as well as my joints.

I know he is going to put me on a battery of medicines...many of them toxic. Probably back on Methotrexate which made my hair fall out the first time. The second time it made it completely straight....My hair has JUST NOW recovered from my last bout of MTX two years ago.

Right now, I am scared. I am scared of the medicines....and scared of what the future holds for me. I know I am in bad shape. I have great GREAT difficulty in moving. It is hard for me to get to standing from sitting. Hard for me to move myself in my bed.I pretty much have to lay where I land and can't turn over or adjust myself.

My feet are getting worse and worse and when it gets to the point where I need a wheelchair, I will no longer be able to live in my house because it is not wheelchair accessible. The future is dark and frightening. I try not to think of it ever. Never "go there" but the visit to the doctor made it all more real.

I am going back in the end of this month to the doctor. Please pray for me...and pray that the doctor will have wisdom what medicines to put me on.
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  • no profile photo CD10895053
    I feel so sorry for you, my dear friend Cyn. Let's just hope that your RA dr. will come up with some good, alot better meds. for you that can put you in better health and that you can move around alot better and feel better over all! emoticon and lots of them, Karen emoticon
    2661 days ago
  • HEALTHY4ME
    OH man hugs and sure do hope they find soemthing. I hvae a friend with it and she ( and I have osteo arth. and I also have) gone off gluten and dairy and wow what a diff. I went off sugar also. All this from a naturopath not just on my own. She also gave me diff supplements but one for arthritic pain and it is helping too.
    HUGS and I sure do hope and pray thast you find an answer. My friend who lives in chatanoga swears since she went of wheat and eating clean she is 70 % better.
    HUGS
    2661 days ago
  • no profile photo CD5645667
    Prayers and Healing Vibes coming your way my friend ..
    I have been on this journey with you for several years now and I know you are one determined lady ..
    Try to focus on eating fresh unprocessed foods and plenty of water.
    I have found,and so have many others, that eating healthy does help with pain and healing ..
    You have already proved that I think, as in one of your blogs you said you felt better.
    Doctors do not have all the answers. Only you can feel and see what is happening in your body.
    Keep up what you have been doing and look to a better future ..
    Mindset is so powerful too and as you have said before, there are glimpses of feeling more able to move ..
    Your determination to be as well as you can be, will get you through ..
    Much Love darling Susie emoticon emoticon emoticon
    2661 days ago
  • TINYBUBBA1
    I can relate somewhat, Cynthia, because that's how my doc talks about my disease. He says, "it's awful, just awful!" I know how scary it all is, but we just have to be in the moment and live literally one day at a time.

    I think you do a GREAT job of managing your life with the disease and limitations you have!

    I will certainly pray for you.
    emoticon
    2661 days ago
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