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Monday, March 03, 2014

No I don’t mean wearing of the green for St Pat’s day.

March is National Kidney Disease Awareness month and the color for Kidney Disease is green. Thus I will be wearing as much green this month as I can. I would be very happy if the world would devote as much, or at least half, the attention to Kidney Disease as is given to the cancer researches. Oh, don’t take me wrong, I do have a special place for cancer research as I lost my grandmother, mother, and aunt all to colon cancer and my dad had a malignant tumor behind his right eye.

In 1977, my daughter lost her first kidney. The other one was very weak and she had to live a delicate life to aid it as much as possible. Her one big desire was to have children, but the doctors told her it would be detrimental to her health and do way too much to her one kidney. She heeded their directions for a few years, but in 1980, they were bless with beautiful baby girl twins. Yes, it was hard on her but they were very happy with their blessing.

Over the next few years, her kidney became weaker and weaker giving her more and more problems. She finally went on a transplant list and in 1995, she got her first kidney transplant. Her body had already been weakened to the point that it was a daily battle with the transplanted kidney. In 2000, the kidney finally quit functioning and she went on dialyses 3x a week.

I don’t know how much you know about dialyses but a lot of people respond by thinking that everything is hunky dory because a kidney patient can be kept alive on dialyses. Yes, it does help to drain the poisons from the body through the exchange of the blood by the same means that the kidney should. Dialyses is an ugly treatment and so very hard on the patient going through it - leaves the patient weak and sometimes very ill. The treatment drains the patient more and more with each process.

There are so many breakdowns within the body that are related to kidney disease and the patient has to be so careful about so many things. A person with kidney disease cannot live a normal life at all.

In 2016, my daughter lost 15 feet of her intestine and colon. We thought for sure that we had lost her then. But her fighting spirit brought her through. Regardless of her illness, she was high spirited and a real fighter. In 2008, she had another transplant, but it never did function and had to be removed. We were all very disappointed. The medical people did everything they could think of to make the kidney do what it was supposed to do, but with no success.

She had other difficulties that I don’t have room to talk about here. She was deemed a surgical risk and not eligible for another transplant. We finally lost her the day after Thanksgiving in 2009. I was with her all day just for a visit. She was sick, but we didn’t know what was wrong. Around 3PM, I decided to take her to the hospital and called her girls. When they got home, we called an ambulance, but she didn’t make it.

I plead with you, that if you have something green to wear or have a green ribbon to wear, let all that your friends and acquaintances know that you support Kidney Disease research. You never hear of marches, or walks, or special events for the raising of funds for Kidney Disease Research. You don’t see people painting signs green, or football players wearing green or everybody wearing green ribbons or even being aware of what the color green means or what the month of March is, except that it is St Patrick’s day.

I hope that you will learn more about this killer disease and see it in your heart to support it as much as you would other diseases that already receive so much attention. Pray that you never have to witness a member of your family be a kidney disease patient.

Let’s see more green that is not just for supporting St. Patrick’s Day.
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  • no profile photo CD13590869
    I am so sorry that you had to go through this with your daughter. As a mother, I can't imagine watching your child suffer. Thanks for sharing your story.
    2350 days ago

    Comment edited on: 3/7/2014 10:59:30 AM
    Thank you for sharing your story Alice. My heart was breaking for you and your family with each sentence I read. I will wear green this month in support of all the other families going through what you and you family did in hopes that one day no-one will have to indure the pain and loss that you did.
    2350 days ago
  • 4CYNDI
    **HUGS** What a moving story. I will do what I can to support Kidney Disease Awareness. This is a great way to remember such a wonderful person. Thank you for sharing.
    2351 days ago
    Nina, my heart went soft when I read your comment. Thank you so very much. I have been in contact with the regional Kidney Disease chapter about more awareness here. It would take an astronomical amount of work to get something started, but well worth it. One of my twin granddaughters (my daughter's young woman) is on the local organ donor team at the hospital. She is very effective due to the ability to tell her mother's story and give first hand meaning to organ donation. I had a sister-in-law who passed of a brain aneurysm and my brother chose to harvest her body at the same time my daughter was getting her second kidney. An emotional time for all of us.
    2352 days ago
    Hello Alice!
    I had to share this with you and the others sharing their heart here. We have to wear a uniform shirt at work, but on the left corner of my collar was a green bow today. I must have had 6 or 7 opportunities to share what it meant. Thank you for opening our eyes to the devistating disease. I truly had no clue until I read your blog. My green will be on all month!
    Bless you, friend, Nina
    2352 days ago
    Alice, your daughter got her strength from you, I'm sure. You did a wonderful blog and educated many, so good job raising that awareness. I will remember to pass more information on at work also and maybe it will help. emoticon TC
    2352 days ago
    I'm so sorry about your daughter. I cant imagine having see my child go thru something like that!!

    Thank you for spreading the word. I didn't know that the Kidney Disease color was green. I will be wearing it today!!
    2353 days ago
  • no profile photo CD4447855
    So sorry to hear about your daughter, Alice, but thank you for raising awareness for such a devastating disease.

    An old friend lost her father to kidney disease when we were 14, and it was such an awful disease. I'll make sure to wear my green this month, and try to raise awareness for kidney disease!
    2353 days ago
    Alice, Thank you so much for posting this education on kidney disease. I am so sorry for your loss of your beautiful and precious daughter!
    emoticon Nancy
    2353 days ago
    Oh Alice. I keep learning more about you and never stop being grateful for my new friend. My DH has had some bouts with stones and the last one put him in the hospital. I watched another ugly killer, Alzheimer's, take my Mother - in- -law. I was her care giver for 8 years. First it took who she was and then it took the body functions we all take for granted. As hard as that was, I don't think any of that comes close to watching your child go through so much. I will absolutely wear green as of tomorrow when I get dressed. Thank you for sharing and raising awareness. I am happy to wear green with you!
    2353 days ago
    People dont realize how much work the kidneys do untill they stop working. A neighbor had dialyses and he would be absolutly miserable: sore, tired, lethargic and sensative to temperature.
    2353 days ago

    Comment edited on: 3/4/2014 12:15:20 AM
    As a nurse ,of course, I do understand what your daughter went through. Kidney dialysis is not just * hard* on the patient's health and other body parts~~it is also VERY time consuming and takes them away from the daily living that us with healthy kidneys take for granted.
    In 1979....I had a kidney operation for a blockage in the ureter ( this was not a disease but a congenital blockage...but caused hydronephrosis of my kidney )
    I was a lucky one ....the operation was successful and my kidney reverted to normal function within the year following.

    I always wear a green ribbon in March and I always support any fund raising campaigns here in our community. ( I do not give to ALL charities but this one is one of mine! )

    emoticon Heather
    2353 days ago

    Comment edited on: 3/4/2014 4:26:22 PM
    I am wearing green today!
    2353 days ago
    Thank you for sharing Alice. I am truly sorry for loss of your beautiful daughter.
    2353 days ago
    I will wear green in March for any other reason except st patricks day. This is by far a much greater reason. I can remember my mom selling halloween candy for the NKF in early 70's to help buy kidney machines in Columbus, OH. My heart goes out to your family. I hope you are taking your courage to as many communities as you can to fight kidney disease.
    2353 days ago
    How very sad. I am sorry that you lost a beautiful daughter.

    My family has been touched by kidney disease. My mother had kidney stones and somehow one kidney became diseased and it had to be removed. She almost died when I was 3 years old but through the grace of God pulled through. Fortunately her remaining kidney was healthy and functioned well for the rest of her life. All my siblings have had kidney stones and my oldest sister has had years of pain and treatments she has so many stones.

    I will promote awareness of kidney disease in solidarity with you.
    2353 days ago
  • RENATA144
    emoticon for spreading the word !
    emoticon emoticon emoticon emoticon emoticon emoticon
    2353 days ago
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