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JESSIE3332
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My salty life: What I miss and what I gain day 1

Friday, February 22, 2019


Since I have been diagnosed with my chronic illness, I knew life would be different. I am one of those active personalities. Rarely was there a day when I didn't leave the house. I like to be on the go. That has all changed. If I push myself to much I pass out. In the beginning days i did that a lot. I was passing out multiple times a day because well I'm stubborn. I am learning my limits. But it has been tough for me to accept. In this blog I want to be able express the loss I have experienced with POTS. I feel I always need to be strong. My husband has been great but he has the fix it personality. Which I love in him bit sadly none of these things have an easy fix. So I just need a place to throw it out there. But I cant just leave it at loss because my life is not bad it is just different. So I want to all show what I have gained in this new life. Loss- my independence I havent been able to drive for 9 months now and it has been the single most difficult adjustment. Since I was 16 I have been able to get in my car and do what I need to do. Now I rely on others for so much. I need rides to the doctor. Someone has to buy my groceries. I cant take a walk around the block. For awhile I couldn't even shower by myself. I have always been the one to take care of others. And I took a lot of pride on that. It has been humbling for sure. Gain-be still I have never had the skill to just chill. I have always had to be doing something. Even if I was watching tv i had to he sorting socks or knitting. Now i have to do things in little chunks and then I have to rest. And not busy rest. I have to be still. And I am finding that there is beauty in the still. There is a verse in psalms that says be still and know that I am God. And I am appreciating that verse in a whole new way. This is my salty life. Pots makes my different bit not bad.
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Member Comments About This Blog Post
  • JESSIE3332
    It is true little ones keep me busy.
    411 days ago
  • SPICY23
    emoticon the hidden gift - beginning to see what is truly important and worth spending your precious energy on. Some of us need this lesson over and over. Be still and Know.

    Wishing you control of symptoms and improved function,

    Peace and Care
    411 days ago
  • 1958TMC
    Oh my dear, I can't imagine a still life, especially with your 2 young ones running around the house doing what young ones do. You seem to be handling it well. Just keep moving forward even If it is ever so slowly💖💖💖
    411 days ago
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