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Overwhelmed but heading for the surface!

Saturday, March 23, 2019

Since last October so many changes have happened in my health I thought I would drown. I was diagnosed with increasing gastropoesis, CKD stage 3b, and a collapsed vertebrae under my cervical fusion that is impinging on my spinal chord. The last one has caused bad headaches and arm, shoulder and hand weakness. CKD has worsened my anemia and I get me so tired sometimes I can barely get out of my chair. Iron infusions help the anemia but are just more needles, I am poked with. I am sick of being poked, prodded and cut up. I have blood clotting issues and have decided that I do not want any more surgeries, or spinal injections or invasive procedures.

Please forgive me for complaining for a few minutes but needed to get that off my chest. All that said, I am close to breaking the surface for a big gulp of air. I have adapted my food plan with the help of a dietician to be low sodium, diabetic, gluten free and kidney friendly. I make sure I get at least 64 oz of water a day. No diet soda or other artificially sweetened drinks. A slow 20 minute or more meal is now normal for me.

I get 10 minutes or more of cardio everyday which is usually walking. 3 times a week I am at the gym in the treadmill. Although 1.5 mph is my fastest speed O am up to 20 minutes. My goal is 30 mins by May 1st. I am teaching my Chihuahua to walk on a leash and goal is to be able to walk her outside by May 10th. There is to much snow and ice still outside to be safe for me yet. Chair yoga and strength training are keeping me going. I do what I can and if I can't do something I look for a way to modify it or do another exercise for the same area that I can do. I may only do 2-5 minutes at a time but do it 4-5 times a day. Slow and steady gets me there! emoticon

Thermacare neck wraps have become my life line in helping neck neuropathy. Physical therapy with use of pressure points and massage is helping to manage the headaches.

I have a sleep study coming up on Monday as my restless leg syndrome is out of control and Dr believes there is also some sleep apnea. If there is sleep apnea a CPAP will help that and a medication change will hopefully help restless leg syndrome.

I would like to thank the Scarlet Dragon Leaders and team and all my spark friends for your prayers and support while I had to be away. I am glad to be back with you! emoticon emoticon
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Member Comments About This Blog Post
    Karen, you have been dealing with so many things. You give inspiration to keep on a healthy path and to use the abilities we have to do what we are capable of doing. I wish you well at your sleep study and hope they help you get over yet another hurdle in your life. I'm happy to hear Mina is doing so well and think you have set some great goals. I can't wait to hear about your first walk with her outdoors!!
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    757 days ago
    You will be in my prayers !
    757 days ago
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    757 days ago
    Keep up the good work. Every little bit of exercise counts! I'm sorry for all your health problems. I hope you find some relief.
    757 days ago
    I'm glad that you are coping with all of your medical problems. I understand how difficult it must be. I will definitely be praying for you, if you don't mind. I am so happy to have you back on the Scarlet Dragons. We missed you. Just take one day at a time. It sounds like you are being very kind to yourself. Stay strong.
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    757 days ago
    OH my goodness, so many challenges! HUGS to you and admire that you're coping as you are with all of this.
    757 days ago
    You've been handed more than your share--but you're also coping with it. Doing what you can do today, a day at a time. Keep up the progress.
    758 days ago
    From reading your blog, I can see that you are definitely not a quitter. With all the pain you have had to endure and still are, you never give up. You are an inspiration to me. Thank you.
    758 days ago
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