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SIBO - more antibiotics, no answers

Thursday, July 23, 2020

So my CT abdominal scan was negative and my HIDA scan to check gallbladder function was normal. Just got a call from the gastroenterologist today to tell me that my follow up SIBO test was positive. So, after antibiotics and 3 weeks of a powdered elemental diet, I still have SIBO.

I feel so defeated.

Thankfully, all the treatment we did resulted in me feeling much better with massive symptom reduction, so that's better than nothing for sure! But knowing that the test was positive again means it's coming back and my belly is a ticking time bomb that will eventually make me really sick again if we do nothing.

The really expensive antibiotics that I ordered through Canada did eventually arrived about 3 months after I ordered them and I've had them waiting for this moment. So, my gastro said I should start taking those today for 2 weeks, then take a specific probiotic once done. She also suggested I eat a low FODMAP diet and avoid sweets.

I don't know how I'm supposed to eat low FODMAP and still eat family-style. During this pandemic it's not practical to have a separate shopping list for just me. I'm sick of restricting my foods. Have you looked at low FODMAP? Here's a sample of foods you can't eat on low FODMAP:
Onions
Garlic
Cabbage
Broccoli
Cauliflower
Snow peas
Asparagus
Artichokes
Leeks
Beetroot
Celery
Sweet corn
Brussels sprouts
Mushrooms
Fruits, particularly "stone" fruits like:
Peaches
Apricots
Nectarines
Plums
Prunes
Mangoes
Apples
Pears
Watermelon
Cherries
Blackberries
Dried fruits and fruit juice concentrate
Beans and lentils
Wheat and rye
Breads
Cereals
Pastas
Crackers
Pizza
Dairy products that contain lactose
Milk
Soft cheese
Yogurt
Ice cream
Custard
Pudding
Cottage cheese
Nuts, including cashews and pistachios
Honey

I'm feeling pretty depressed right now, but I'll shake it off. It was just pretty upsetting to find out I still have this after all I've done to try to eradicate it. If it doesn't respond to this new treatment, then she said we can consider looking into root causes such as gut motility issues, etc. Guess we better do that testing before the end of the year since it looks like I'm going to exceed our deductible. *sigh*
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