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MEADSBAY
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MEADSBAY's Blogs

The emotional roller coaster continues
Thursday, September 17, 2020      27 comments

Poor Patrick. He is in such pain from the new tumor. The new clinical trial protocols are causing horrible side effects. They may take a break from that to address the pain with radiation and stronger drugs. Lucy, 11, his oldest, is awar... Read more
Oh, my!
Thursday, September 10, 2020      23 comments

Here is a pic from 1970. That is my toddler older son, Christopher, now 51. And 18 year old me, pregnant with son Patrick, now 50. And my ... Read more
Oh, happy day!
Monday, September 07, 2020      26 comments

Patrick is feeling so much better the last few days! emoticon I assumed he had started on the new stronger me... Read more
More news
Thursday, September 03, 2020      27 comments

Well, the mass they found on my son Patrick’s spine was not a dealbreaker for the clinical trial and the docs at Dana Farber think the new protocol may actually help with that issue and possibly shrink that so it doesn’t cause as much pain. T... Read more
Update on Patrick and family
Monday, August 24, 2020      27 comments

Last week my son Patrick underwent extensive testing to get the baseline data for the clinical trial study he is enrolled in at Dana Farber Cancer Center in Boston. Unfortunately, they discovered a 2-3 cm mass on his spine near his tailbone, w... Read more
My foot/ankle pain...what a pain in the butt
Sunday, August 16, 2020      26 comments

Not much change with that situation. The pain comes and goes, seemingly randomly. Doesn’t seem to matter if I rest it or go for walks or wear different shoes. I can go a day or two with no pain and then...bam!...there it is....limped in pa... Read more
Happy 50th birthday to Patrick!
Tuesday, August 11, 2020      23 comments

Had a nice dinner with son Pat and his family In Newport at a restaurant of his choosing...blah over salted food but a great setting. He knows the chef so we got an app and our dessert compliments of him. Patrick was so happy! And Mimi too... Read more
Life is full of good news and bad news lately
Saturday, August 08, 2020      22 comments

Good news first: Patrick has been accepted into a trial study at the Dana Farber Institute starting August 17th. ... Read more
I feel naked!
Saturday, August 01, 2020      25 comments

Finally got that dang boot off yesterday...that was a lonnnnng three weeks! It was hot and heavy and my hips complained quite a bit. Need to walk gently for a week and see if the immobilization worked to heal the tendon tear. It felt AMAZI... Read more
Yes, I have been AWOL
Wednesday, July 22, 2020      22 comments

Not sure why...no busier than usual. In fact, less, as I cannot go for a walk due to this dang boot I have been sentenced to for three weeks. It does... Read more
Feeling my feelings
Wednesday, July 15, 2020      27 comments

I am sad. Disappointed. Angry. Heartbroken. I can not deny all of these feelings. I could not even fall asleep that first night. Mostly I am heartbroken for Patrick and his family as we have built this trip up to the hilt for months.... Read more
Nooooooo!!!
Monday, July 13, 2020      27 comments

I am trying not to cry. Disappointed is not a strong enough word. Devastated is closer. Anguilla has extended their border closing until July 30. Plus, St Martin (which we land in before the ferry to Anguilla) has prohibited all visitor... Read more
The passports came yesterday!!!
Sunday, July 12, 2020      24 comments

Obstacle #1 surmounted emoticon One down, three to go! ... Read more
One sad Sparkie here
Saturday, July 11, 2020      35 comments

I recently blogged about my wonky left foot, hurting off and on since last fall. It was so random and sporadic that I ignored it but I did get an X-ray on it in December, which was normal. Well, it has been getting worse lately, more frequen... Read more
See?
Sunday, July 05, 2020      22 comments

One of my best features! Lol! ... Read more

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