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Infusion Update
Monday, December 05, 2016      5 comments

Thank you all so much for your thoughts and prayers. I sailed through the infusion - no reactions. I was a wreck going in this morning. I saw quite a few of my old commuter mates on the way in. It was hard as I have so deteriorated, especiall... Read more
Sunday, December 04, 2016      2 comments

Tomorrow I go for a Rituxin infusion - 6 hours! I hate needles. In a word, I am scared. Moderately hopeful,too. My understanding is that there will be Benadryl because of hives. Maybe nausea. Nausea doesn't frighten me. We will have to ... Read more
Papa Elf
Saturday, December 03, 2016      9 comments

Well, I was at a holiday vendor show. DH helps me. Once he gets going, he is gracious. Plus, he loves to shop the shows. Captured this today. Tee... Read more
My Haul
Thursday, December 01, 2016      7 comments

Well, since I have been home and without work for a year, I have lost 3 -5 pounds. However, since I have been home I go to the gym pretty religiously. Things have shifted around. So, two years ago I bought some nice new pants, primarily at Ta... Read more
The Elves Workshop 2016
Saturday, November 26, 2016      6 comments

8 hours (11;30 - 7:30, not including prep time) 7 pounds of butter and 3 pounds of chocolate and the Elves Workshop, aka Elfday, aka Suze's Sweatshop for children is a wrap. We did 17 different cookies and candies and one centerpiece each. This... Read more
Thanksgiving Adventures
Thursday, November 24, 2016      3 comments

As I've said before, I have mixed feelings and experience with Thanksgiving. My mother was West Indian and always said it wasn't her holiday. She tried. And I felt at an early age,it was very hypocritical. I was denounced as a Communist for ... Read more
Adventures in Dressing
Sunday, October 30, 2016      7 comments

Due to my condition, sometimes I need help getting dressed or undressed. Mainly, it's help with the spectral leg aka brace. It needs to go into a shoe that will hold it. This usually means a tied shoe. The joke is I never learned how to tie m... Read more
Surviving the Sweet 16
Saturday, October 29, 2016      6 comments

I had to go to DH's niece's Sweet 16. She's my oldest elf and I truly adore her.Also her dad, my BIL just helped me get a new car. He spent hours on it and told salesman I was his fave. I always avoid these things if possible. They are so di... Read more
The Old Girlfriend, Postal and Rituxan
Tuesday, October 25, 2016      4 comments

What a difference a day makes! An update on the postal situation from yesterday. I placed calls to his landlord, psychologist and the VA. The VA was helpful. No calls from the others by 4 p.m. so I call K back. He's very cryptic and said th... Read more
Monday, October 24, 2016      6 comments

I need to get this out. Consider it a rant, vent and reflection. I have been worried out of my mind about my postal worker. We argued at the end of August about his buying a car. Yes, ok, I get it. I have bad taste in men. We have been fr... Read more
Disabilities or Limitations or Issues
Thursday, October 20, 2016      4 comments

I am having problems with the whole disability concept. I know I really can't walk well anymore. Actually, I usually forget until I try to stand or move. I told my doctor a few weeks ago that I think and feel I am me until I try and stand. H... Read more
Hairy Horror Stories ?
Wednesday, October 19, 2016      2 comments

I went for my annual do at the hairdresser - cut, color, highlights and a manicure. I have explained before that I was brought up to distrust salons. My mother felt that it was just a place for idle gossip. Not that she didn't set her hair eve... Read more
Expectations, Perceptions (And Mammos)
Tuesday, October 18, 2016      2 comments

It’s odd the way the brain works . I have been fascinated that after all these years I finally dropped the weight. And yes, I do keep on going on about it. So, this morning I get on the scale when I wake up, it’s 128.5. Up .5 but 10 pounds ... Read more
Doctor's Visit
Friday, October 07, 2016      8 comments

Back at the doctor's today. I was hoping for her to be able to get Ocrelizumab. It's not yet available. There is a similar drug but it is not approved for my disease: Rituximab It's a 5 hour infusion and then in two weeks, another o... Read more
Rejected and Beating the Odds
Wednesday, October 05, 2016      9 comments

Well, I was rejected by the company I saw on Monday. I spent most of my weekend creating the last minute presentations. Yes, more than one. It was unusual. This is a major company. However, the position was unique and sounded almost identic... Read more

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