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4/20/20 5:22 P

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Momof3,

Good to hear you are going to take D3. Doctors think calcium leads to strong bones, when actually vitamin D3 hardens bones,improves immunity, etc. I also take a multivitamin with MINERALS daily. A thyroid doctor recommended I take this since mineral are important for thyroid patients. I recommended this vitamin to a gym buddy with thyroid disease. She has more energy and feels better since she started taking it daily. Take vitamins with food.

Ouch! Sorry about broken jaw. Sorry you weren't able to continue low carb diet. I lost weight on low carb diet but that ended. Not because I ate carbs. It just stopped working. Veggie diet worked but I was starving. I am trying an new eating plan now.

Good luck on your weight loss quest.


Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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MOMOF3HFC's Photo MOMOF3HFC Posts: 82
4/20/20 3:18 P

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SOFT_VAL67 I am also in Kentucky. I am in Central Kentucky right smack dab between Louisville and Lexington.

Never Give up!


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4/20/20 8:22 A

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Appealstome No actually they didn't say anything about Vitamin D3 my Gyno told me to take Calcium. I have already hit menopause. Had to have a complete Hysterectomy a few years ago. But the next time I hit the store I will defiantly get some. Thank you for telling me. After I read what you were saying I looked it up and actually if your low on D your body doesn't absorb the calcium so I have been taking it all this time for nothing it seems emoticon Other than when I had a broken jaw lol my lowest weight was 140 and that was right after I had my twins. Once I hit 40 the weight kept coming on. I do crave sweets not as much as I use to. I tried the low carb diet eating only 20/40 carbs a day. I lost weight that way but after a month My body CRAVED carbs. I gave up and all the weight came back. I hope I can kick it this time. Thank you so much for the advice

Never Give up!


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4/17/20 3:16 A

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emoticon Momof3. Sorry hypothyroidism brought you here.. Congratulation on quitting smoking. Sorry you have osteo and spinal bone spurs. Do you take over the counter Vitamin D3? Thyroid patients are usually deficient in D3. Need proper level of this supplement for thyroid function. My thyroid doctor tested my level several years ago and it was 20. Normal level is 50 or more. A year after taking D3 and lifting weights my osteo was gone. I have bones of 20 yr old now You may be on too low of dose of levo or not converting medication into active form. Eating food that contains selenium (a few brazil nuts, mushrooms, etc.) helps body convert levo into active form. You are nearing the age of menopause and your estrogen could be low. My daughter and son started having thyroid symptoms in their 40s.

I have been hypo for over 50 years. I lost weight and kept it off before menopause. Gained in menopause. I managed to lose a little weight following intermittent diet. I ate three meals between 9 am and 7 pm with only a cup of tea before bed. My meals consist of protein, veggies, fruit and small carb ( pc of bread, small potato, 1/4 cup of pasta or rice, etc.) I gave up junk food and sweets. I eat a piece of fruit if I crave sweets.

I sympathize with your pain. I have been in pain flare for a month. Swimming decreases or eliminates my pain level, but I haven't been able to swim due to gym closure. My back and hips ache and ankles are terribly swollen, but that hasn't stopped me from walking. Some days I can only walk a block, but I know not walking makes joint pain worse.

Water intake, diet, exercise and adequate sleep are also necessary for proper thyroid function. Everyone is different. What works for me may or may not work for you.

I log my food, exercise, water, sleep, meds daily. It took two years for me with med changes to determine what does and doesn't work. When I find something that works life throws a wrench my way. A cold, allergy, stress, etc can turn things around and I am back at square one. I brush myself off and start all over again when I find myself in this situation.

We didn't develop thyroid disease overnight. It takes time for symptoms to decrease with the help of good doctor, proper medication, water, diet, exercise, sleep and relaxation. The hope that I will lose weight and feel good is reason I continue to try.

Good luck.


Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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MOMOF3HFC's Photo MOMOF3HFC Posts: 82
4/16/20 4:48 P

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Hello all,
I was diagnosed with Hypothyroidism about 3 years ago. I am 48 and have always had trouble with losing weight ( except for when I was a smoker kicked that 7 years ago). I struggled as a kid even I would eat good food snack on carrots, rode my bike walked the farm and I was still over weight. I am taking 137 MCG of Levothyroxine I am not way over weight but I am heavy enough. On top of hypothyroidism, I also have osteoarthritis, and bone spurs on my spine. So the added weight hurts the hips and then the hips and back makes workouts painful. I feel like I am at the end of my rope. I found this page and I am hoping that talking with you all will help me to keep going and not give up. It's nice to meet you all and thank you for having me in the group! emoticon

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2/27/20 5:22 A

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Cammie,

75 mg Levo is a low dose. Do you know your TSH, Free T3 and Free T4 levels? A number of thyroid patient have low testosterone and take a supplement with doctors supervision. I would ask your doctor to check your D3 and B12 levels since most thyroid patients are deficient. D 3 is important for thyroid function, immunity and energy. It lowers inflammation and defends against viruses, MS, cancer, etc. Food contains D2. Can only get D3 from sun at 3 pm without wearing sunscreen. I take 5,000 iu of over the counter D3 daily. Levels need to be 50 or above.

Walnuts and fish are good source of Omega 3 that is good for brain and skin. I am glad your diet improved. Yoga and medication is good too. I know work can be stressful since I work too. Selenium is important for thyroid function too. You can get this mineral from eating a few
Brazil nuts daily, mushrooms, etc. Selenium helps your body covert levo (T4 medication) into active form (T3) which is necessary for us to feel, look good and lose weight. I eat selenium foods and take a daily vitamin with minerals.

It is nice that you stay up to chat with hubby when he comes home. What time do you go to bed? My thyroid specialist instructed me to be in bed at 10 pm. Other thyroid experts recommend the same bedtime. The only time I have been in bed at that time is when I am sick. The 10 pm bedtime has to do with cortisol and repair process.

Staying up late decreases cortisol levels. The way our body works is cortisol levels are lowest after dinner to get our body ready for sleep. Highest upon waking. When we stay up late we disrupt this process which leads to low morning cortisol, memory problems, fatigue, etc. It takes 3-4 hours for our body to reach REM sleep. Rem sleep is when our body repairs. I understand your guilt over not chatting with your hubby. My hubby worked late. I used to stay up and wait for him until I developed cortisol problems. Illness led to me going to bed my regular time. A healthy wife and mother was more important than sick one.

I have read a lot of studies that levo works better when taken before bed. A number of thyroid patient swear by this method. Plus it eliminated the waiting period to eat breakfast, taking other medication and vitamins in the morning.

My bp and cholesterol were high when my thyroid meds and levels were low. Increase in thyroid med lowered both. My triglycerides dropped 40 points in Dec.



Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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K9KIDDIE's Photo K9KIDDIE Posts: 699
2/26/20 11:24 A

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Hello and thank you. I'm currently taking Levothyroxine 75mg. I recently had bloodwork due to and almost non existent libido. It was FSH, LH, Estrogen, and Testosterone. The testosterone was extremely low, so I'm waiting to discuss that with my Dr at my next appointment. She has not checked D3 or B12 that I know of. I do like walnuts and fish. I would say my diet is very good compared to where it was when I started last March. Work can be very stressful, so I've been working more yoga and meditation into my days.

I do know sleep is very important. This one I've been working on for a while. I sleep very good when I get to sleep. My issue is that my husband and I work different shifts, and I like to stay up to see him when he comes home. So we can chat about our day and just see each other for a bit during the week. When I do get to bed before he comes home I do feel better over all, but then I feel bad for not being able to see him as much.

I will have to check out those books and get some ideas.

Cammie
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2/13/20 4:11 A

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Welcome to the group K9kiddie. Sorry hypothyroidism brought you here.

I was dx'd 50+ years ago and been on medication since. Your symptoms sound like low thyroid. You didn't mention what medication or dose you take. Estrogen stops during menopause, which may lead to body needing higher dose or a different type of thyroid medication. You may want to try having some soy with lunch or dinner to see if that relieves your symptoms. Soy contains estrogen. Don't consume soy or iron until 4 hours after taking thyroid medication. These cause thyroid medication not to be absorbed. Taking D3 with or right after thyroid med is okay since it doesn't interfere with absorption.

Has your doctor checked your D3 and B12 level? Low levels of either can cause fatigue. Both vitamins are important for thyroid function. My D level was 20 when first tested. I take 5,000 iu of over the counter D3 daily. D3 energizes me and I take with lunch. It takes a few weeks to notice energy difference. I don't take B12 since it made me extremely hungry.

I had dry, cracked skin and memory problems last month due to medication that wasn't working for me. Dry skin can be low thyroid and/or dehydration. How much water do you drink daily? I swim, drink at least 8 glasses of water daily and take one tablet of evening primrose oil (supplement) daily that dermatologist recommends for healthy skin. I consume grape seed oil and eat walnuts and fish that contain Omega 3. Omega 3 has been shown to improve memory.

I use Trader Joe liquid coconut oil with lemongrass after bathing to moisten skin. Face moisturizer in the morning and hand cream at night.

How do you sleep? My memory isn't good when I don't get enough sleep. No problem for me after getting 8 hours sleep. How is your diet, exercise and stress level?

Some things I mentioned may help. If they don't, you may require higher med dose or different medication. Most doctor use lab levels to prescribe medication. They notice we lose some weight and automatically lower med dose. That is what happened to me last month. A good doctor uses labs and patient's symptoms to prescribe medication.

I recommend reading Isabella Wentz thyroid books. She is a pharmacist with thyroid disease. I read somewhere not to drink coffee before eating bc coffee on an empty stomach messes up our hormones. I did this an my energy increased. A dietitian told me to eat high protein for breakfast due to hormones present upon waking. I do this too.

Good luck.








Edited by: APPEALSTOME at: 2/13/2020 (04:18)
Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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K9KIDDIE's Photo K9KIDDIE Posts: 699
2/12/20 10:50 P

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Hello everyone. I'm new here. I was diagnosed about 7 years ago. I kept telling my Dr. I was tired, and I knew that hypothyroidism ran in my family. She did not initially want to test me for it. But I got tested eventually, and needed to take medication. Since I've been losing weight and getting healthier, my dosage has gone down. I've also within the past two years hit early menopause... and I feel like everything has just been amplified. I feel like I have no energy most days, I'm always freezing cold, but if it's really hot out then I'm just too hot, like my body cannot handle either extreme, this winter I've been getting really dry cracked skin, and the memory... I can't remember anything! The not being able to remember things and concentrate is really frustrating at times, I've always been one to remember all the little details. I joined to find out some more information that you all might have, and to get ideas on how to deal with symptoms. Thank you for having me.

Cammie
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11/18/19 3:13 A

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MCPEG50,

Sorry you went thru so much. I am glad your therapist, trainer and doctor helped. Great that you lost weight. Losing weight with this condition can be slow. I didn't do well on levo. I take Amour. NP wasn't available when my doctor attempted to switch me.

I am not sure how I can help you. I am 70 with 3 children in their 40s and have been empty nest for a while. I still work part time, belong to gym, knitting group, and volunteer, etc.

I was dx'd 50 years ago and no longer have a thyroid. I diet and exercise and gained weight due to constant med changes. I finally became stable and lost some weight on Armour and taking antibiotic caused me to gain. What works for one person may not work for another. My friends lost on WW. I couldn't lose on that diet. You need to find out what works for you. Tracking food and exercise has helped me.

We need proper diet, adequate sleep, relaxation and exercise in addition to medication and supplements to feel and look better.



Edited by: APPEALSTOME at: 11/18/2019 (03:23)
Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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MCPEG50's Photo MCPEG50 Posts: 64
11/17/19 12:40 P

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Hi all! I had a total TT about 10ish years ago and was on Levo until Oct. 2018. Prior to TT I was hyperthyroid with goiters that developed during pregnancies with 2 boys. But they would go hot and cold with fluctuating hormones. Went through menopause early (42) Dr's said it was because of stress but my thyroid wasn't considered. Life was hectic in those years. My mother had a long term illness I was taking care of her and 2 small kids. My mom passed and my body collapsed. Many thought it was depression and I was sent to a therapist. After 4 sessions therapist looked at me and said whatever I had wasn't mental it was physical and referred me back to the Dr. and that started the chain with endos and a diagnosis of toxic multinodular goiter thyroid and the total TT.

All those years on Levo I thought things were okay just couldn't shake the weight gain that had occurred (I gained 50+ lbs in 6 mos). I hired a personal trainer in August of 2018 and she listened to things that I was struggling with. I had no appetite, I couldn't sleep right, I had joint pain especially my knees and I had a very meh outlook on life. I know things weren't right but I didn't have a knowledge support base (my family) that knew what to do to help. She researched for me and got me to revisit my thyroid treatment and get with a more naturopathic Dr. to evaluate everything. I switched to Nature Throid and it was like my world changed. I was also very D deficient- my level was 11 and now I take a lot of supplements but overall so many things are better. With all the changes with him I've shed about 12 lbs but it is stalled and I need to do more. So I'm here. I was in the other thyroid group but they don't look to be as active. Hoping to find others to help me to stay accountable and focused on progressing ahead. I'm 57 yrs young with 2 boys 20 and 18. So I'm nearing the empty nest phase of life. I want to be healthier and more energetic to enjoy it. Looking forward to getting to know everyone.

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5/23/19 3:20 P

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SS,

I am glad you found doctor to treat you. Two of my children have thyroid problems and their doctor won't treat.

It is good that your doctor is willing to try different meds. I have been on all of those and more.

I just finished reading a good thyroid book....The Brain Body Diet... about whole body health for optimal thyroid function. Not a diet like WW or AIP. Best thyroid book I have read so far.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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SHININGSTAR007's Photo SHININGSTAR007 Posts: 30
5/22/19 5:08 P

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My thyroid was functioning at bare bottom efficiency due to a medication that ruined it. I went 9 years being told it was fine. Switched doctors and found out it was *not* fine and by then had multiple serious other health problems. Was diagnosed with Hashimotos also and other auto immune diseases. I'm very thankful for my doctor; it's a collaboration, not a dictation relationship. Have taken Armour Thyroid, a compounding pharmacy version, NatureThroid and now taking NP Thyroid. All is not perfect, but a heck of a lot better than before a proper diagnosis.



Edited by: SHININGSTAR007 at: 5/22/2019 (17:08)
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10/11/18 12:43 A

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JEN,

I met a lot of endos like you saw in my 50 yrs with thyroid disease. When a GP wouldn't test or send me to endo, I went to free gyn women's clinic that tested me. Test showed I was very hypo.

You are lucky your gyn treats thyroid issues. They won't where I live. Only an endo will treat. Thyroid testing is annual part of gyn visit. I hope Val can find gyn that does the tests.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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WYOJEN95 Posts: 195
10/9/18 2:37 P

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We don't have any endocrinologists near us either. I went to see one in May because my OBGYN wanted me to and it was a terrible experience. I basically took a day off work and had to pay $250 for some jerk who told me that the only real symptom of thyroid problems is hairloss and that any other symptoms are in my head. My husband even asked me if he was a real doctor.

Anyway...I see my OBGYN for my thyroid issues. I told her after my wonderful experience that if she sent me to an endocrinologist again she'd better find me a good one and she'd better have a damn good reason. LOL!!

Anyway T4 and T3 can be tested in a standard annual wellness blood work. So if you can't find a doctor to prescribe the test, see about may just going to a health fair and requesting the Thryoid panel with your bloodwork?

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10/6/18 5:18 A

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Sorry there isn't an endo in your area. I hope you can get her to order the tests. GP and internist spend the least time in med school. Mine told me she knows enough to refer me to specialist. She tried treating my thyroid and messed me up royally.

My thin niece has PCOS. It is painful. I had adrenal fatigue not getting enough sleep.

Maybe your doctor doesn't know enough to treat you, which is why she doesn't want to do the tests. I understand how hard it is to change doctors I think our mind hopes the doctor we see will be enlightened or change. It takes me getting fed up with symptoms, etc for me to make a change.


Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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SOFT_VAL67's Photo SOFT_VAL67 Posts: 3,398
10/5/18 5:41 A

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Years ago, probably around 2005, I was seeing an endocrinologist. She ordered most of my first testing concerning thyroid and hormone, etc.
She diagnosed me as having PCOS. and having adrenal fatigue. Of course, keep in mind at that time I was also about 60 lbs heavier.
I was somewhat surprised about the PCOS, considering she only did blood work but didnt find any issues with my ovaries.
I am guessing it was based mostly on my weight.
She put me on med/some kind of steroid medicine that was difficult to find, the hospital pharmacy was the only one who had it, considering there about about 15 pharmacies in the area that was strange. and even they had to order it and wait about 3 days to fill the prescription.
It made me sick, it made me itchy and swollen and flushed, and it raised my bp so I had to stop taking it.
Since then, this doctor has left and we no longer have an Endo in our region.
I am seriously surpised we have none here....
Considering the number of obese people with diabetes and thyroid issues in eastern Ky
My aunt recently had to have thyroid surgery and had to go to Lexington, which is about 130 miles from home.
So, I have my general doctor, who really doesnt seem to know or care that much about such issues. She really seems to be more about here, take yet another pill and see ya in two months.
I know I need to find another doctor, but I have been seeing her for so long now, its scary to think of switching to someone else.
And usually shes good about ordering tests, etc, but she doesnt seem to want to diagnose and treat, just medicate.

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10/5/18 1:25 A

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Val,

It doesn't sound like you are being heard. I hope calling office gets them to order thyroid testing. The tests nurse said you had done are 6 months old. My thyroid doctor tests my levels every 3 months. You are lucky your gyn does hormone testing. I can't get a gyn here to do them. Just about everyone is deficient in D. My daughter without thyroid disease is low and has to take supplement. I don't understand how doctor/nurse can justify A1C and cholesterol tests and not thyroid.

When my daughter had thyroid symptoms her doctor ordered a thyroid test that is useless and led to no treatment. My GP and rheumy ordered the same test. If this useless test come back high, it justifies doctor ordering regular thyroid tests.

At any rate, if you don't get anywhere with your doctor, phone your plan ( BC, Aetna, Health Net, etc.) and lodge complaint. I had to do this when my GP refused to do thyroid testing or refer me to thyroid specialist. I had thyroid disease for 40+ years. My plan (HN) logged complaint and sent me to specialist for testing.

You said you have nowhere else to do due to your ins. What about changing your ins? If you have HealthNet, why not change to Blue Cross or other plan? How about switching to different GP?

My thyroid doctor didn't order free T-3 this time. My TSH and Free T4 are high, which I am sure is the reason I am gaining weight and not sleeping. Will see what endo recommends tomorrow.

Good luck.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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SOFT_VAL67's Photo SOFT_VAL67 Posts: 3,398
10/4/18 12:02 P

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So, I went to my doctor last week and asked her to do some blood work, I havent had any done in a very long time. She had her nurse set it up, but when I mentioned Thyroid testing she said according to my records, I had tests done in March, which isnt true. I had blood work done at my gynecologist office, which was for Progesterone, Testosterone, and Estrogen and vitamin D. Which I suffer and am being treated for Vitamin D defiency disorder....So, I tried to explain to the nurse that my T3/T4 had not been tested.
So, here I am. she ordered tests only for my cholesterol and A1C but left off the Thyroid testing.
I cant understand why she did this and I havent gone to have the blood work yet, as I am feeling like my voice isnt being heard that my doctor is pretty much ignoring my concerns.
I am calling back on Monday when they come back in and once again try to get her to add the thyroid test to the blood work. If she doesnt I dont know what else there is I can do because I have no ability to go elsewhere due to my insurance, I would have to get a referral first. I am so frustrated by this.

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9/13/18 1:33 A

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15,000 iu sounds like a lot. I suggest taking with vitamin K-2, which insures D gets into bones and not in between joints or arteries. I did a lot of research on K-2 after daughter's doctor recommended it with D3. My nurse friends take it too. So, I started taking D3 with K2.

Multivitamin seems to be causing me stomach pain. I come down with the symptoms no matter when I take it. I stopped taking and no more pain. I am going to look for a liquid vitamin replacement.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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SOFT_VAL67's Photo SOFT_VAL67 Posts: 3,398
9/12/18 9:28 A

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I take 15.000iu daily. D3. only take more higher dose because I have had malabsoption problems since having my gallbladder removed.

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9/12/18 1:01 A

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Val,

Your otho is right about keeping D level above 60 Closest to 80 is norm for D3. Sorry you haven't had cholesterol, A1C and D testing in a while.

I was going to ask my thyroid doctor to order these tests, when I noticed she had on lab slip. Apparently, my insurance (Medicare) only pays for these tests and bone density once a year.

How much D3 do you take? I started taking 1,000 iu daily when my level was 20. Doc increased me to 2,000 daily and level was still below 50. I take 5,000 iu daily now, exercise and my level is still under 50. Cholesterol is important test. If it is high, thyroid doesn't work properly. Mine is always high, but I can't take cholesterol medication since it causes terrible leg pain, etc.

Sorry about the way your doctor treats you. I know first hand how hard change is, and hope you make the move.



Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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SOFT_VAL67's Photo SOFT_VAL67 Posts: 3,398
9/10/18 8:58 A

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Appealstome----Thanks for the info and yes, I am indeed vitamin d def. I broke my foot in 2013 and after several visits to the ortho doc, my foot just wasnt showing any healing, they tested me and my vitamin d level was 12.
He told me at that time that the broken foot had probably saved me from many future health problems.
I take vitamin d3 and last time my level was checked it was 43, which is "NORMAL" according to the docs, but to all guidelines i read about, it is still low. My ortho told me to try to keep it above 60.
My doc never orders blood work. I always have to bring it up to her if its time for it.
I couldnt tell you the last time my cholesterol, or a1c was checked, I would guess 3 years at least.
The nurse who works there is really good, if I ask her she will put it in the chart and she will remind the doc to order the tests.
But my doc herself, I dont know its like, ok, heres your meds, see ya next time.
I hate change but you are right, if she wont take a role in my health care then shes no good for me.

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9/5/18 2:58 P

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Val,

It isn't easy changing doctor and sometimes necessary. I have been many changes in my lifetime, which has been worthwhile. It is not good to stay with doctor that isn't concerned about anything. Makes me think she doesn't have time to treat patient properly or lacks the education. I am looking for another doctor.

Thyroid maybe the reason for your symptoms. My sister and friends take blood pressure medication swell.

You should also have D-3 testing with thyroid. Thyroid patients are usually deficient in D-3. Deficiency in D can cause fatigue, etc. I take 5,000 iu of over counter D-3 in morning since it energizes me.

Do you take vitamins? How is your diet, exercise, sleep? If any of these are off, they can contribute to symptoms. My daughter changed her habits, which relieved her symptoms.

Good luck!

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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SOFT_VAL67's Photo SOFT_VAL67 Posts: 3,398
9/5/18 9:14 A

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thank you for the info. I should ask my doctor to do blood work but she never seems concerned about anything. I really need to find another doctor I guess but I hate going thru all the change. I was hoping to find out if these meds would help me with my sluggish feeling, tiredness dry skin and hair. and maybe help me figure out why I hold onto weight like its gold.

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9/5/18 2:32 A

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Val

Welcome to the group. Thyroid and HRT are different. HRT are sex hormones...estrogen, and progesterone or combo of both.

Thyroid medication consists of T4 and sometimes T-3 medication. Synthroid, Levoxyl, etc are T-4 meds. Cytomel is straight T-3 medication. Amour, WP and NatureThroid is combo T-4 and T-3 medication. Our body has to convert ( inactive) T-4 medication into
T-3 ( active) for good thyroid levels, feel better etc.

Below is two links that explain endo ( thyroid) system.


www.endocrineweb.com/conditi
ons/thyroi
d-nodules/thyroid-gland-cont
rols-b
odys-metabolism-how-it-works-sym
pt
oms-hyperthyroi



www.hormone.org/hormones-and
-health/th
e-endocrine-system



The hormone system link:


www.urmc.rochester.edu/encyc
lopedia/co
ntent.aspx?ContentTypeID=85&
amp;Co
ntentID=P00559


A good gyn will test thyroid and sex hormones before recommending and starting treatment. A law covers a gyn testing thyroid and sex hormones since most thyroid imbalances go undetected. Unfortunately, most doctors do not order proper thyroid tests. Proper tests are TSH, Free T-4 and Free T-3. My daughter underwent years of improper thyroid testing.

Taking thyroid medication can lower blood pressure, lead to better sleep and mood and weight loss when properly regulated.

HRT can cause weight gain, etc.. I know cortisol increases bp, but do not know if HRT does.

My GP tried to treat my thyroid condition and over medicated me. My gyn sent me to endo for treatment.

Good luck deciding.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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SOFT_VAL67's Photo SOFT_VAL67 Posts: 3,398
9/4/18 8:46 P

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My story is, I am new to this team. I have recently been told by my gyno that it is time to discuss hormone replacement therapy.
My question is this, what is the difference in the types of meds given for HRT and for hypothyroidism??
Are they one in the same or completely different?
do they have the same side effects/benefits?
I have very high blood pressure and have never been able to take BC due to this reason and now, being told its time to discuss HRT makes me wonder what is the difference.
Everything I have read about HRT indicates it is not good for people with high bp.
I dont have an endocrinologist in my area to go to for this and dont know if I can trust my GP, she doesnt seem to be very interested in testing my thyroid or checking to see if these meds would help me.
I have most of the symptoms of hypothyroidism, so right now my gyno is really the only person I can turn to for help and dont really want to end up on the wrong meds.

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7/3/18 1:24 A

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Jen,

I am glad you didn't have thyroid cancer. Do you take thyroid medication? Verywell article helped me realize I was lowering my metabolism by skipping meals. I committed to eating three meals daily. Dinner before 8 pm and nothing afterwards until next morning. I have more energy, sleep better, less pain, etc. Today I woke early, was on time for swim class, swam laps for hour after class and lifted weights. I haven't felt this good since December and wish the same for every member.



Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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7/3/18 1:16 A

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Eileen,

emoticon for coming up with eating plan and swimming. I was so frustrated, I gave up. See my giving up blog on my Spark page.

I blamed thyroid medication and my doctor for not losing weight when skipping meals lowered my metabolism. I am a few days into trying something new and feel much better.

Good luck!

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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WYOJEN95 Posts: 195
7/2/18 12:43 P

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I love Verywell!

I realized that I have never shared my story. Unlike some my thyroid journey has really been brief:

I am 41 years old and about 18 months ago I noticed some things happening with my body. I all of the sudden had spurts of very bad body odor...that was my first sign. Then I started to have trouble losing weight. I lost my libido completely. I thought to myself..."well I'm 40 now, maybe this is just what being over 40 is like." Over these next few months I started to have stomach ulcers...ALL THE TIME. Stomach pain...ALL THE TIME. I severely restricted what I could eat without pain and I gained about 15 pounds during the next 6 months. I could literally hardly eat anything without agony. I thought perhaps this was some kind of gastrointestinal problem. My doctor treated me for an intestinal infection, and things did improve to at least be liveable.

In July of 2017 we went on a cruise and when we came back I was tired....SOOO TIRED. I had an extremely sore throat and a painful lump on the side of my neck just above the collar bone. Painful to the touch, very sensitive. I thought maybe I had contracted some kind of strange Carribean virus, but I knew I'd been having these other issues. I suddenly couldn't tolerate heat AT ALL, my body odor and stomach problems, hair loss, skin problems. Maybe I was having early menopause. I had my annual exam the first week of august and so I would talk to my OBGYN about all these problems.

What I wasn't expecting was that during my exam my doctor told me "you don't have a swollen lymph node...you have a swollen thyroid. Since my sister had thyroid cancer things went very fast from there and my thyroid was gone by the end of August.

So that's my story. I felt almost immediately better once my goiter was gone. It was not cancer BTW. But I'm new to this whole thryoid thing. Trying to figure out my new normal.

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7/2/18 9:15 A

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Thank you for posting the links. I will check them out! Really going to concentrate on what I am eating and how much. Going swimming today which I hope will help too.
Glad to be a part of this group. I was getting frustrated with my weight and was going to drop out completely, but I think all I need is others who understand where I'm coming from to keep me going. Thanks!!!! Eileen

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7/2/18 1:36 A

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Below are links to weight, diet, and thyroid disease. I found them interesting and helpful.

www.verywellhealth.com/diet-
for-hypoth
yroidism-3231574


Losing weight with thyroid disease:

www.verywellhealth.com/thyro
id-disease
-weight-loss-4014140


Here's another article I found helpful:

www.verywellhealth.com/seven
-thyroid-d
iet-secrets-3233060


Edited by: APPEALSTOME at: 7/2/2018 (02:08)
Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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7/2/18 1:33 A

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emoticon to the group Roundturnfour. You have great goals. I hope you find a plan that works and leads to weight loss.

I have same problem. My thyroid goes off constantly. I gained 30 lbs under my present doctor's care. I have read that thyroid patients have slower metabolism than normal people and shouldn't eat past 7:30 pm. Doing this and not eating until next morning lead to weight loss for me.

A female member of another group I belong to did this. She only eats in 12 hour period. If she eats breakfast at 8 a.m., dinner is 8 p.m. Nothing after that. She lost 11 lbs so far.
You can change start and end time depending on your schedule. If you eat breakfast at 6 am, dinner is 6 pm. Eat breakfast at 9 am, dinner is 9 pm. I try to avoid eating dinner later than 7:30 pm

I desperately need to lose some weight before vacation in August since my clothing is tight.
I began eating dinner at 7 pm and nothing afterwards. I always eat protein, veggies, fruit and one slice whole grain bread for breakfast per dietitian that said we need to eat protein for breakfast due to hormones present upon waking. If I eat oatmeal or another carb for breakfast, I can't stay awake or function. Small amount of carbs at each meal is necessary for thyroid, adrenal and brain function.

I realized from reading articles yesterday, that I messed my metabolism by skipping meals. I ate breakfast late on Sat and became ill while doing errands. I realized when I looked at my watch that it had be 5 hours since I had something to eat. I had a four package of peanut butter crackers and bought grapes and had some. My tummy felt better and symptoms disappeared. Sleep is also important. I gain weight and hurt when I don't sleep enough.


I am here to support, help and cheer you on no matter the number on the scale.

I came across a some articles yesterday that may be of interest and help. I will put them in next post.



Edited by: APPEALSTOME at: 7/2/2018 (01:53)
Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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7/1/18 4:14 P

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I decided I need to be in a group who understands how lousy one can feel with Hypothyroid. I have had thyroid issues for many years now. Started out hyper and lost about 20 pounds in a matter of days! Talk about sick!!! Now I'm way heavier than I used to be and it seems to be stuck on for good!! I've decided it's time I get serious again and do something about my weight or at least try to have a better way of eating. Got to stay healthy as I can!
I'm gluten and lactose sensitive so I've given up both so that isn't a problem for me. I hate soy so don't have to worry about getting too much :) It seems what ever I eat sticks!
I've been on Sparkpeople for a long time and have had success with weight loss until the past two years when my thyroid started going from normal to low and back and forth. Right now I know it is off again!!! Oh, well. I do hope this group will be the motivation I need to deal with this and fight harder! Will try my best to be an encouragement to others too!

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6/29/18 1:46 A

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Jen,

Sorry you suffered with ulcers, stomach pain, etc. Thyroid is the master switch for the body. When it is off, stomach, brain, heart, etc. problems appear. A number of my friends were dx'd with thyroid disease in menopause or after heart attack.

What type of medication and dose do you take? I take Armour which is combo of T4 and T3 medication. Eating is problem, but drinking water isn't. I drink over 100 ozs daily.

I ate a lot before being dx'd. Doctor that dx'd me gave me rx and diet to follow. Diet consisted of three meals daily of protein, veggies, fruit and small carb and worked.

I dislike bread. Sandwich, taco, pizza, etc. is out. I was gourmet cook when I had family. I hardly cook now that I am alone. I don't eat fast food or like dining out. I buy rotisserie chicken and eat for a week. It's easier and cheaper than buying a chicken, cleaning and cooking. I buy pre breaded, or marinated fish that only requires 20 minutes in oven. I ate a precooked turkey sausage with frozen/nuked broccoli and nectarine for dinner tonight. I eat healthy choice chicken soup and pc of toast for dinner in pinch. Gym lunch consists of a small can of tuna salad with crackers or package of peanut butter crackers with grapes. Sometime a few almonds.

My lack of cooking is due to cooking for one since I cook a lot when I visit my daughter and sister.






Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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WYOJEN95 Posts: 195
6/28/18 11:22 A

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Yup same here-starving in the morning. Too many carbs make me tired. The rest of the day I could get by without much. If I'm snacky it's because I'm bored. I was like this prior to the thyroid issues however. I haven't had an appetite since I was in College.

It tend to try to eat ever few hours. Even if it is a yogurt or a handful of nuts. But if I'm busy I forget to eat...at all. It's like I have to set a timer to remind myself to eat.

Since the entrance of my thyroid problems in the last year though I have noticed that I have lost interest in food at all. I used to like to cook and try new recipes...now I eat because I know I need to, not because I want to. It's like someone took all the enjoyment away from me in trying new foods and flavors.

Last year when my thyroid was all wrong and I didn't know what was wrong with me my stomach was really haywire. I had non-stop ulcers and pain whenever I'd eat. I couldn't believe that I'd go a week eating MAYBE 500 calories a day and end the week gaining weight. I was pretty sure there was something wrong with my, but I didn't know it was my thryoid until months later.

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6/28/18 1:53 A

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WYOJEN95

Interesting that you have lack of appetite too. I also have insomnia, which seems to be getting worse.

I am starving in morning and eat protein per dietitian due to hormones present upon waking. I can't stay awake or function if I eat carbs like oatmeal, cold cereal, pancakes, etc for breakfast. I track food and still low on calories.

I think Dash will work since I ate my usual breakfast, and several snacks ( yogurt, protein, few nuts, grapes, etc.), instead of lunch while doing housework on Sat. I had regular dinner of protein, half baked potato, veggies and fruit. Number on scale was down the next day. It wasn't exercise since I swam on Sunday, didn't eat right and gained.

Several small meals daily have led to weight loss in the past. The only way I can do small meals is to stay home, which isn't possible.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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6/27/18 4:38 P

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Tee-I also struggle with lack of appetite. If I was left to it I'm not sure I'd even eat 1000 calories a day. I have to track my calories to make sure I eat enough. DASH diet looks interesting. I never had blood pressure problems until my thyroid went wacko!! But I have noticed that I am much more salt sensitive than I used to be or at least noticed before.

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6/22/18 3:15 A

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emoticon and emoticon to the group Sharon. I am glad taking synthroid led to your feeling better. I have weight problem too. The Dash diet is for people with high blood pressure since sodium is decreased to 1,500 daily. It is rated the best diet. I tried the diet before discovering I have low bp and aldosterone hormone and need to consume more salt. I eat a lot of veggies and fruit with protein for each meal. I am not crazy about bread, and milk products. Can't eat soy and raw veggies with thyroid disease.

My problem is thyroid medication decreases my appetite so much, I don't eat enough daily. Dash recommends eating every 2-3 hours. I can't do that. It took a month for me to force myself to eat three meals daily.

Here is link that may help you with the diet:

www.fitwirr.com/health/tips/
dash-diet


Notice how much a person has to eat for 2,000 calories daily. Wow! I have never been able to eat that much.

Give the diet a try. You have nothing to lose except weight. Start small. Eat more veggies, fruit, nuts, etc. and more often. I saw a Dash chart somewhere that permitted checking off foods eaten daily, but don't recall where. I find charts where food can be checked off easiest for me to follow. Dates back to my WW days.

Good luck!

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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6/22/18 2:39 A

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Hi JackJack91,

Sorry you are overwhelmed with diagnosis. Are you taking thyroid medication? If so, what kind and strength? I did everything you did and still gaining. I have sleep problems too. No fatigue or depression since started taking D-3 supplement. Thyroid patients seem to be deficient in D-3 and taking this supplement daily did away with my fatigue, and depression. Ask your doctor to test your level. Mine was 20. Normal level is 50-80.

Sorry you have to take bp and cholesterol medication. These medications are necessary for heart health. Cinnamon is good for lowering bp. Veggies, fruits and fiber are good for lowering LDL. It take a year to regulate thyroid levels. Then, your bp and LDL should decrease. Hypothyroidism teaches us patience.

I was on the prescribe medication to fix things. Took adjustments in every area of my life ( diet, exercise, water, destress, rest, etc.) for me to feel better.

I applaud your commitment to better your life. Good luck!

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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6/22/18 2:25 A

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Hi and Welcome to team Maria. I am happy to read that treatment makes you feel better. You are doing what is necessary to feel and look your best. Good luck.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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6/21/18 8:25 P

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I have been on this page for several months and was diagnosed about three years ago. Still haven't lost weight, but I feel so much better with synthroid. Does anyone have experience with the DASH Diet? My doctor has recommended it, but I am not sure where to start.

Edited by: SKMBOK at: 6/21/2018 (20:27)
Sharon

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Hello Sparklers!

I知 new to the team and I知 so glad I found you! Love SparkPeople articles!!

I致e just been newly diagnosed with Hypothyroidism and I知 completed over whelmed with it all. I have tried for the last year to lose weight. Increasing exercising, drinking water, cutting out certain foods and with all that I still gained weight. I also experienced trouble sleeping, cycle going haywire, fatigue and depression. I feel like a textbook case but now I feel better knowing it just wasn稚 me not trying hard enough.

My Dr put me on meds, that I started two days ago. I知 not crazy about taking meds. It seems the older I get I知 doomed to be on them. Also I have high blood pressure and high cholesterol -taking meds for BP, and a supplement for the LDL. I want to feel better and I want to get off all these meds. :-( My doctor doesn稚 think much of natural remedies and is always pushing a pill to fix things. I know somethings require that but I also believe natural remedies have their place also.

I知 on this journey now so I知 committed to bettering my life the best way I can. Again happy to have found this group. Look forward to learning from you all. emoticon



Valerie

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Greetings,

My name is Maria. I am 25 year old female that lives in Flowery Branch, GA. I am Hypothyroid Fighter that was was finally diagnosed in February of this year and started treatment with Levothyroxine.

With my move to North Georgia my Family Nurse Practitioner began to listen and after a very swollen neck schedule a ultrasound of thyroid. After the ultrasound they located a nodule on thyroid gland and the primary care physician and my FNP decided to send me on to a specialist.

After years of both my mother (a Hyper/Grave's Disease Survivor) and I fighting to get help. I was able to find someone that listened and began seeing a great endocrinologist that diagnosed me with Hypothyroidism and started me on 50 mcg of Levothyroxine. So far the treatment seems to be helping and I am hoping for a good update in July. That is my story and now I am currently working to get myself healthier and better shape despite the odds weighing me down from the Hypo.

I am looking forward to getting to know you all and add my support in your journeys and fights against hypothyroid and/or Hashimoto's Disease. I also hope to learn how everyone copes, solutions or helpful tips, and more.




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4/27/18 1:39 A

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Hi, I am Tee, 68 and new to the group. I was diagnosed hypothyroid at 16, prescribed Armour, given diet to follow, lost weight and felt good and kept weight off until 1997 when an endo changed me to Synthroid. He ( wrongly) told me Armour was being taken off the market. The rumor came from Synthroid manufacturer that was trying to increase profits. Synthroid was later found not to be superior to Armour. The doctor that prescribed Synthroid said thyroid wasn't my problem and talked me into taking Fen/Phen. I didn't lose weight, felt awful and almost died before firing him.

GP treated me next and over medicated me. I was paralyzed and flew to east coast for treatment. Those doctors ordered tests that are normal part of yearly thyroid checkup. I never had these tests in my life. The tests showed I do not have thyroid due to taking medication for so long. The doctor stopped medication for a week and started me on low dose of levoxyl. Then, increased the dose a few weeks later since I was severely hypo.

I found a new endo upon returning home. It took almost 2 years of trying different medication and doses to find combo that worked for me. Levoxyl (high dose) with small dose of Armour was a success. I felt great and lost weight on same diet and exercise program that caused me to gain on other meds. Unfortunately, this doctor moved out of state.

The new endo that took her place was great while doctor that was leaving was overseeing her. Things went from good to bad after she set up her own office. She discontinued the med combo that worked and prescribed T4 medication. I began gaining weight and inches immediately. She prescribed Metformin next claiming I was insulin resistance. Met caused my kidneys shutting down. Discontinuing Met started them working again. There have been constant med changes in the 3 yrs I have been her patient. I have taken levoxyl, synthroid, cytomel, Nature Throid, and compounding medication. She prescribed WP Thyroid which is not being manufactured a few months ago. I am finally back on Armour, but it isn't working due to her constantly lowering the dose. All these changes have lead to me developing low cortisol, renin and aldosterone. I was able to increase my cortisol level thru lifestyle changes, but not renin and aldosterone.

I have gained 30 lbs under her care. She keeps stating my levels are fine although she only goes by TSH. She does other tests, but doesn't use them or how I feel to treat me. She told me I have to stop blaming my thyroid for weight gain, fatigue, etc. She said another condition is the cause. She said fibro was the other thing, which is a lie since rheumy she sent me to said I don't have fibro and very little arthritis for a person my age. Plus my inflammation markers are very low.

I have had calf pain since under her care. Every specialist she sent me to told her my symptoms are thyroid related. My pulse and blood pressure drop suddenly after eating lunch or dinner. I have difficulty falling asleep and waking and become hyper after exercising. My ankles have been very swollen for months, which is reason I gain 2-3 lbs overnight. Endo said swelling is thyroid related and does nothing. A retired nurse friend that also sees this doctor said she is afraid of being sued.

Since there wasn't a test for Hashi when I was dx'd, doctors assume I have it since it is the most common reason for hypothyroidism. Gaining weight is depressing too. I diet and exercise more than friends and family. They lose and I continue gaining.

I felt like I was dying a few months ago and know I can't continue with this doctor, but finding new endo or natural path that is knowledgeable about treating thyroid and adrenal problems is impossible.

I belong to all the sites that were mentioned and more. I read everything that has to do with my conditions.

I am frustrated and hope joining this site will help.


Edited by: APPEALSTOME at: 4/27/2018 (02:12)
Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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VHMOM78's Photo VHMOM78 Posts: 22
3/17/18 3:26 P

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Hi, I'm a 39 year mom of three (20, 16, 13). I discovered my hypothyroidism when my youngest child was 18 months old. Everything stopped working, and I was exhausted, cold, put on a ton of weight, and just feeling yucky. I went to the doctor for testing, and found my TSH around 19.7. I was placed on Levo, but still felt yucky even after several adjustments. I was feeling pretty frustrated, so decided to visit a doctor who follows a more natural approach. With her, I discovered I had Hashi's, and I wasn't taking the correct medication. She switched me to a combination capsule of T3 (32mcg) and T4 (160mcg). Fast forward, I now take the combo capsule, plus and additional 25mcg of Levo. My numbers look good, and feel fairly human....mostly. Weight is a never ending struggle, which I've accepted, and have learned to be patient with myself. There are still days where I'm so exhausted, but I listen to my body. It's been a long road, and will continue to be, but I'm ready to make some changes to better health and balance. So, here I am.....

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YICHE12's Photo YICHE12 Posts: 43,944
1/31/18 5:07 A

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I have been meaning to write this for a long time... Well, this is as good a time as any.

I was diagnosed with Hypothyroidism back in 1999 but I suspect that I had it for many years before this. Back in 1997, our then-doctor had me tested for TSH but it came back negative so no treatment was given. However, I did have all the symptoms: fatigue, hair loss, constipation, achy body, etc. etc.

So when finally diagnosed in 1999, I was put on Levothyroxine (T4) and this went on for about a year and half. My levels fluctuated and I needed to be tested ALL the time. Tired of this yo-yoing, I researched Hypothyroidism and came up with the site that Mary Shomon has (I have posted a link on this team page -- All Hypothyroids should join this site). The article said that most doctors treat the results and not the symptoms which was true. It went on to say that if T3 was introduced, the levels would stabilize. I spoke to the doctor about this and gave him a copy of the article. He said that we would try this for 3 months and get tested after this. It worked!!! I have not changed my dosage since 2001. My levels are very stable.

What happened after, well I did gain weight and was obese and it seemed as though it was out of control. I did go out walking occasionally and in 2014 I joined a Tai Chi class. I was at this point nearly 184 lbs (for a 5'1.5" tall person). This went on and I would go on diets and exercise regimens just to stop after a couple of weeks or so. It was just not working for me. At the end of April 2008, my sister introduced me to Spark People and to a 30 day challenge with Coach Nicole which was going to start on May 2. Once I started SP, I started losing weight and have gained my self-confidence once again. I am not a happy person being obese and am now in the overweight side of the BMI but I am going down ever so slowly to my ultimate goal.

My biggest problem is that I do enjoy eating but have been measuring my food ever since. I portion everything that I eat with the exception of my veggies which I love. I have logged in my food every single day (except when traveling and at airports). I continue to exercise regularly although I could improve on this. I have slowed down somewhat but my mojo is coming back. I have lost 34 lbs but need to continue on this journey.

It is wonderful feeling that one is in control of one's life. Food is enjoyable but should not overtake your progress.



Edited by: YICHE12 at: 1/31/2018 (05:09)
Lise (pronounced Lees) - EDT
Co-Leader - Calling All Canadians Team
Challenge Leader of 5% Winter into Spring 2020 Challenge for Daisies (Private Team)
Leader - Facial Exercising Team
Co-Leader - Hypothyroids...Join Together





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1/12/18 11:17 P

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Hi my name is Tiffany. I've had Hypothyroidism since I was 13. I realized something was wrong when I was always tired, falling asleep in class and just in general. One day I was watching TV on my parents bed and noticed I had lumps on the sides of my neck. Not having a sore throat I went to my mom and told her. She looked at them and noticed they were visibly swollen. Neither of us knew what was going on and google didn't exist at the time so we couldn't just look it up. She called our family doctor and I had an appointment the next day.

At my doctors appointment a lot of words were thrown around. I never would have thought that I would have a something that would affect me for the rest of my life. I went and had ton's of blood work and x-rays. A week later the doctor called and told my mom what he thought I had and referred us to an endocrinologist. I was also scheduled for an appointment to do some radiology work.

The day came for my radiology work. I was nervous and STARVING!!!! I couldn't eat until the procedure was done. So they laid me down on a metal slab under a machine that looked like an X-ray machine. I was supposed to hold my head back to extend my neck for an hour. An hour passes and the nurse tells me we have to continue this procedure, because the radiologist doesn't have enough information. 8 hours later they finally have enough information. I was allowed to eat and I missed an awesome field trip at school because of
this. A couple days pass and we go to my Endocrinologist. While we were there the doctor talks to us about the radiology report. He opens my file and his eyes go wide. I freaked out naturally. He looks at us and says, " Well she is definitely Hypo-". Come to find out my thyroid is completely inactive. I was then prescribed the elusive Sinthroid, the pill that I would be taking for the rest of my life.

So every 3 months I had to go have blood work done and have my medication evaluated. When I was younger it was easier taking my medications and remembering I had to take them. I had mom on it telling me everyday to take them. Once I was on my own it was a bit harder. I was also kicked off my dad's insurance because I was 19 and I didn't know anything about government insurance. I went a year without medication and it was the most excruciating experience of my life. I almost lost my job, I totaled my car, and I lost my apartment and most of my friends through bad decision making. I was so slow mentally and physically. I didn't know how important it was to take my medication. I didn't realize that I would swell up. I didn't know it would affect my body like it did. I had never had this problem. I was desperate. Luckily I knew someone who worked at our local DSHS and she let me know what I had to do to get on government insurance. I finally did and was back on medication, but this time there was a new medication out called Armor Thyroid. I tried this and right when it was time to refill my prescription they discontinued it. Back to Sinthroid it was!

I am now doing a whole lot better than back then and have 3 beautiful children. But now that I'm done having children I am not happy with my figure. I am now trying to lose all the weight I've gained over the last 8 years. I know its going to be a long hard road but I'm ready. I need to be able to see my children grow up and live a long life with my husband.

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7/18/17 12:02 A

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Hi, I'm new to this group but not to SP. I've been on here for a bit over 2 years, have over 800 days in a row with 10 minutes+ exercise, but have only lost 10 pounds. I can remember going to the pediatrician and he'd lecture me on weight. He'd give a cookie to most kids, but only give me a half cookie. As heavy as he was, he must have done that to a lot of kids.

I've been on thyroid meds for a long time, varying between internists and a endocrinologist, who I really didn't like. The meds were changed all the time, depending on the doc. When they'd say my meds were too high and dropped them, the weight soared. About 30 years ago, the endocrinologist sent me to a surgeon at a major teaching hospital in St Louis. They did a biopsy and called me at my office. When I was sitting in my little cubicle, they told me that it was malignant and it needed to be removed on Monday (it was Friday). I was scared to death. The guy was the head of surgery there. Well, I was lucky, I guess. It wasn't malignant, but they removed my entire thyroid and all of the parathyroids (only left a tiny piece of one).

Since then it's been a constant battle. Often the test results say that I'm normal, but I'm not. I suffer the fatigue, constant feeling cold, thinning hair (wait--maybe it's just that I'm getting older).

One doc sent me to a sleep center. I hated going there, hated the cpap machine and used it sporadically. But lately I've been gasping at night and decided to ask for a new machine. I endured the sleep center test that they made me take. I tested this time as severe sleep apnea, but I think it was because I couldn't get to sleep. My husband, the love of my life, had been diagnosed with prostate cancer and we had a joint meeting with the doc the day I had to do the sleep study.

I will admit that I'm sleeping better now. I can at least stay awake all day. Now if I can only lose more weight. I also don't have much strength, was frightened after a fall a couple weeks ago when I couldn't get up on my own. I'm hoping that the docs can figure out the thyroid levels.

Does anyone else used Armour thyroid? My ex doctor said it was only for younger people. I've switched from the generic to Synthroid. Maybe that's why I'm feeling a tad better.
Marian

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6/29/17 6:22 P

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I have been diagnosed with Hypothyroid for almost 15 years. When I was in my mid 20s I was extremely active (dancing, exercising, on my feet for work) and eating healthy (seriously), and yet I could never lose any weight, in fact my weight started to slowly creep up. I was diagnosed after sharing with my doctor that my family has a significant history of hypothyroidism. By the time I was 30, I was 20lbs heavier than when I was diagnosed. I had my first child at 34, and never lost the baby weight. After 2 more children in the last 3 years, I am now at my heaviest (even beyond my pregnancy high mark). After struggling with getting on the right dosage of Levo, I am finally feeling like we are getting things under control. Have started working with a partner doctor at the local weight loss medical facility and hope the accountability and monitoring will help me make progress on my goals to be healthier...

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HIPPYJONJON's Photo HIPPYJONJON Posts: 160
6/22/17 6:31 P

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I had my thyroid killed in 2000 due to goiter and graves disease.
Monday I found out from Rheumatologist that I have graves disease antibodies attacking
My joints and probably my eyes.
Also confirmed a 15 year diagnosis of fibromyalgia,
With every key spot hot for fibro.
I had no idea that I still had graves, I was told killing the thyroid was the answer and
Everything would be fine once synthroid was leveled out.
Wow, I have lost my hips and kneees, and my rt hand and shoulders are going fast.
I go the 12th for confirmation and hopefully treatment options,
Then the 13th to surgeon to "save the date" for my first knee replacement.
I know it's going to be tougher than having my hips replaced,
But pain is the pits.

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4/26/17 3:02 P

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Hello!

I am new and frustrated with my health so I guess I better start at the beginning right. =)

My thyroid issues started with an ambulance ride to the hospital. My thyroid levels were at the toxic stage and doing a lot of damage. I told my doctors I didn't feel well. I couldn't explain how I just felt weird and I was gaining weight like crazy. They told me it was all normal and I probably had a little bit of postpartum depression. I gained 10 pounds during my pregnancy but then 6 weeks after I had him I started ballooning up. I gained 30 pounds in less than a month and nothing had changed. They treated me with radiation as that was the quickest way to get my levels under control. It worked for a year.

Then it stopped working altogether and they changed my diagnosis to Hypothyroidism. I have been on medication now for 17 years. They add T3 at year 16. I continued to gain weight that year after my thyroid broke and ended up 100 pounds heavier.

In addition to that I have developed severe food allergies. I am allergic to MSG and all of its other names, soy, parmesean, blue cheese, and ginger. Have PCOS, endometriosis, andometriosis, survived both cervical and ovarian cancers, and went into menopause at the age of 27. My doctors have declared that I am weight-loss resistant and there is no hope for me.

Now my goal is to be the healthiest me at whatever weight I am. I am still angry about the weight gain. I hate that people assume that its because I don't eat right. I am allergic to every junk food imaginable! I eat the right amount of calories I just can't ever get the scale to budge. I once tried. Spent 90 minutes a day for 4 months in the gym... I lost 3 pounds. I cried and cried and cried some more. I don't want to get my hopes up that its possible.

So I guess that is my story. I am hoping you all have some words of wisdom that can help me on this new journey.

Alivia


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PERRYBABE's Photo PERRYBABE Posts: 5,637
3/28/17 9:25 P

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My story/life experience is very similar to Jeanknee's. I was diagnosed with hypothyroidism 32 years ago (4 years after surgery to remove a goiter-like growth in my neck). When diagnosed, I was pretty bad off. I really had no thyroid function and was close to being comatose. I was severely dehydrated. How I went to college and maintained a dean's list average is a bit beyond me except for God's strength. I believe it was truly a miracle that I was diagnosed before it was too late. So began the "ups and downs" of yo-yo dieting. It came to a point about 10 years ago thinking I was doomed to be overweight for the rest of my life, so I might as well "enjoy the ride." A trip to a new practitioner made me realize I had to try something. One practitioner even suggested bariatric surgery. I considered it, but dismissed it. The new practitioner gave me some basic guidance, and I realized I at least had to try again. I had already started exercising, but decided to also return to Spark People. Realizing that this journey to fitness isn't prescribed meals and a "don'ts list" including my favorite foods, I began to realize it's not about "diet." It's about managing what goes in and what goes out. It's a lot like managing money, except, unlike money, we want more going out than coming in. emoticon I had already lost about 17 pounds but realized it wasn't enough. At the new starting point, it took me about 2 1/2 years to reach my ultimate goal weight. The grand total is 122 pounds at this time. I went below my goal weight, and I've gained a few pounds back. However, I'm still within my goal weight range. It varies some, but I'm staying in my goal range. The differences in my health have amazed me as have other changes (i.e. jewelry getting too big, difference in shoe size, blood levels returning to normal, more energy). At first, I was discouraged when I didn't see the scales dropping, but a friend told me she could tell I was getting smaller but that I was probably changing fat to muscle with all the exercise I was getting. At that point, I decided on a non-scale goal of getting out of plus sized clothing. That happened sooner than I thought it would, and today I'm wearing a medium. I didn't imagine that would happen. During that time, I also broke my shoulder and had to have surgery 6 months later. I continued to exercise, thanks to my therapy and a recumbent bike. In fact, we wore out a recumbent bike and are using a 2nd one. The first one was a gift from my in-laws, and the second only cost $50, thanks to another in-law. I can't wait until it warms up and I can get started walking. While a dramatic weight loss was desired, for health reasons, it doesn't/didn't solve all of life's problems. It also presents some new problems sometimes (i.e. dealing with a new body image, jealousy of friends and acquaintances, learning to maintain the weight loss over an extended time). Still, I know this is "right" for me. Spark People and the tools here were truly an answer to prayer.

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JEANKNEE's Photo JEANKNEE Posts: 22,903
2/20/17 2:32 P

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Based on what I've learned over the last 16 months, I'd say my hypothyroid condition is merely a symptom of being on the autoimmune spectrum. I share so many experiences with many of you.

What seems to have had the greatest impact on me is finding the right diet for me. Liz Lipski says something like it's important to find the right diet for the right person.

Nutrition has been an extremely powerful healer for me. Food is essentially my medicine. Of course, I do take thyroid medication ... Armour Thyroid. None of the synthetics did anything for my body. Absolutely, nothing! I say food as medicine because adjusting my nutritional intake has had incredibly powerful effects on my health and well-being.

To heal my body it has been necessary for me to eliminate grains. Not just gluten grains ... wheat, barley, rye ... all grains. No rice. No quinoa. No amaranth. No teff. I have also steered clear of legumes, as advised by the clinical nutritionist that's guided me over the last year. I've tried to eat legumes several times since August and have experienced an inflammatory flare every time. So, I continue to fine tune what my body will and will not tolerate and realize that what's supporting it now, could change. I cannot get complacent. I need to remain vigilant and pay attention.

It appears clear that the underlying autoimmune condition and its associated inflammation is related to my food allergies from birth, my respiratory conditions as a child and young adult, connective tissue injuries, cancers (yes ... cancerS), hypothyroidism, sleep apnea, thinning bones, lost height (I am 2" shorter), the non traumatic pelvic fracture and its grueling recovery, optic nerve damage, and my continued struggles with inflammatory flares.

I am 57 years of age and have been menopausal for nearly 10 years. The failure of my thyroid was evident 27 years ago. I have been medicated for my thyroid condition for 20 years. I have managed to release roughly 85 to 90 lbs . This has taken a concerted effort on my part. My lifestyle has changed. And, I've been fortunate to find allies in the health care profession to guide my process. Finding allies in the health care profession has been tough.

My experience over the past 16 months has taught me the power I have to choose, in terms of what gets put into my mouth. How we choose to nourish ourselves is far more powerful than I realized. To transform my health, I needed to transform my life.

It has not been easy. But, the rewards have been great!

Jeanne
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Maintaining since June 2014
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"Believe me, your body has the ability to restore itself to perfect health, once you eliminate the foods and other forces that prevent it from healing." ~ Steven R. Gundry, MD

"I'd like to dispel once and for all the myth that any single diet approach works for every individual." ~ Peter J. D'Adamo, ND


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LISAG66's Photo LISAG66 Posts: 72
2/18/17 4:31 P

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I probably had thyroid issues most of my life. My mother had a huge goiter removed along with about half of her thyroid when I was little so it probably runs in the family. I was always the chunky one in the family, the fat kid at school. I never really had much energy, but to me it was normal. I never knew what it was like to have abundant energy like other kids. I guess adults just figured it was because I was fat and lazy. They certainly told me so.

No one thought to have my thyroid tested, not even my family doctor. But then I only saw him a few times after I hit my teens. In my family you didn't go to the doctor unless something was broken or you were bleeding too much to stop without stitches. So after I got married and tried for four years to get pregnant my doctor thought of all these wonderfully embarrassing tests we had to go thru. Turns out the only thing wrong with me was my thyroid barely worked. One month of being on meds and I was pregnant. Three years later when I decided I wanted another baby I went back on thyroid meds and had my son. I didn't not take my meds as a means of birth control, it was just a side effect. I just have had a very bad habit of not taking meds that I'm supposed to.

That habit has been with me until just the last year. My current doctor was getting a bit put out with me because she was trying to calculate the right dosage of meds to get my numbers into a healthy range. This past year something clicked and I have been very good about taking care of myself. I've taken my handful of different meds for my various 'isms' and my doctor is very pleased with me. I can't honestly say that I've noticed more energy, but then I do weigh over 350 pounds and have a lot of other things that sap my energy.

I haven't actively tried losing weight until recently so I don't know if being steady in my numbers and in taking my meds will be helpful in that pursuit. I have other medications that have the main side effect of weight gain so they probably offset each other.

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MAMATINNY's Photo MAMATINNY Posts: 78
2/18/17 4:45 A

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Hello all! Not new to SP or this team I just came back from a 2 yer hiatus from my final two pregnancies.

I found out I had Hypo back when I was 13. It just sort of popped up one day I had two noticeable bulges on either side of my neck. I asked my mom if it was normal and she made me an appointment to see the doctor. I had also been showing signs that we just chalked up to me being a teen. I was super tired all the time and feel asleep a lot. My mom thought I might have been on drugs. I never touched any my whole life.

So at my appointment the doctor ordered a CBC and a T4 TSH panel. We waited and the results came back my T4 levels were severely abnormal. The doctor ordered another test. I spent 8 hours one day under a radiation machine that measured the activity of my thyroid. Results came back from that and my thyroid had become completely inactive. The dose of medication I take is ridiculous and doctors are always questioning me making sure its the right dose like I don't know what I'm talking about after 17 years of having this.

My weight fluctuated as a teen and once I hit 20 it was all over from there. I had no insurance and was without medication. I tried to go to the "free clinic" but they wanted me to buy the medication from them for $50 and it wasn't even the correct dose. So I dug into my rent and paid for this insanely small dose of 10mcg. I normally take between 224 - 250mcg. Finally it was legal for me to get government assisted insurance with my pre-existing condition. Finally I got to see a decent doctor that could give me the right stuff.
Since then I've been doing well with my medication but I like food now.

I don't have the best eating habits. I am terrible at eating breakfast and I really need to eat less pasta. My biggest weakness is chocolate and Ice cream (not necessarily together). Nothing is balanced about my diet. My exercise consists of me walking up two flights of stairs all day and running after a 1 year old who just learned to walk 3 months ago. I've also got my 4 month old who I carry on one hip and the 1 year old on the other.

So my goal is to get back in shape for myself and my children. I don't want to be that mom who needs a wheel chair when she is 35 because my knees and ankles can't hold me up. Plus heart disease runs in my family and I'm not tempting fate with that one either.

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RJM82799's Photo RJM82799 Posts: 206
1/3/17 7:57 A

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Good Morning I am new to this group, but not new to spark people. I smoked for 20 years, and quit in February of 2007-Almost 10 years ago! About a year after I quit, I noticed a very large lump on the right side of my neck. After going through numerous Dr's and specialists over many years, I finally had a partial thyroidectomy in December 2012. Since then, I have been on thyroid meds. Due to lack of insurance, I haven't been able to refill my prescriptions in nearly a year. So, I am trying to get healthy on my own, sans medication.

Anyway, I am a Mom to 2 teenagers, a sophomore and a senior. My daughter (the senior) has Fibromyalgia and Rheumatoid arthritis. I am happily married, for 15 years now. My hubby is very supportive. I am from Chicago but we currently live in Aurora Colorado. I am a HUGE Chicago Cubs fan. I currently work as a cafeteria manager at a public school.

Trying really hard, for myself and my daughter, to get on track. I know that I cannot help her, if I cannot help myself.

Thanks for listening!

Michelle

GO CUBBIES!!!

The Future is no Place to Place your Better Days~~~ DMB


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JANICE12601's Photo JANICE12601 Posts: 1
12/27/16 10:59 P

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Hello, new on spark and new to this team. Was curious to hear others story. Not sure this is posting to the right place, but will give a try. I also have started with a Brazil nut a day. I had read that it could help. I have had hypothyroidism for 30 years. Have tried many different medicines finding out that quite a few of the generics did not change my levels. The only one that seemed to help was Levoxyl. The problem I have found with Levoxyl, it is occasionally recalled or on back order. Right now the pharmacy is giving me twice my dosage and I am trying to cut the pills in half with a pill cutter. They are crumbling. It is all that is available, so will make it work. It is so nice to read others stories, each one is unique with their own set of struggles. Weight and being tired, with some days just feeling "off" are my main struggles. Hoping that getting back to healthy eating habits and exercise will help, but also getting more information from others with hypothyroidism.

AURA18's Photo AURA18 Posts: 11,689
10/16/16 9:45 A

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emoticon everyone! Maribeth, age 56, ready to learn ways to manage the multiple symptoms
I was a healthy weight till the symptoms of hypothyroidism overwhelmed me around age 42 in 2002. I was not diagnosed till 2009, when I switched doctors and was finally tested. On Levothyroxine, for 5 years, I still didn't feel better and gained more weight, health care providers were not very helpful. In 2014, I joined SP thyroid group and found out about the need for selenium and started eating one Brazil nut a day. I felt better in a couple weeks!

I lost weight in 2014, then went back to my old habits to gain it all back in the winter, 2015. Then Jan. 2016 I got serious again. Went from obesity to overweight BMI in July. Now, I am 15 pounds away from healthy weight BMI that is my first goal weight. Then I will set a new goal for maintenance weight range

Edited by: AURA18 at: 10/16/2016 (09:48)
Maribeth MN CT Panthers draxe.com/ dance u.nu/ixjy planks u.nu/9w-u u.nu/httpsunu7lag u.nu/43qj2
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8/21/16 12:09 A

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My story...................From the time I was born until 20...I had an SUPER HIGH Thyroid....(at the time I didn't feel lucky) I was always under weight...and could NOT gain a single lb.....When I graduated High School still only weighed 98 lbs....I am 5'6".(Took Tapazole for high thyroid levels) ..forward to age of 20-24 yrs old...had cervical cancer, twice, two surgeries....chemo, etc....developed Asthma (so they thought) I was put on Prednisone at age of 22 and was left on it......by mistake....it did help me gain weight....(boy did it!)....so by age 25 married..up to 105....but started looked bloated, super fat cheeks....like chipmunk....(this became my nickname)...during these years.I look like I am 6-7 mnths pregnant at all time......I developed Rheumatory arthritis, acid reflux, several more surgeries.also sinus surgeries......I continued to gain weight about 5-10 lbs each year...but it never came back off......by 2002 (I am now 32)....I was FINALLY REMOVED off of Prednisone....they figured out I did NOT have Asthma but Acid Reflux had been going into my lungs....which Is why I couldn't breathe...(thus the 2 prev GERD surgeries fixed this issue)..then 2 months later my DAD passed away..from 5 year battle with Cancer...I was not sleeping well...or eating right...I was not right...slurred speech. couldn't walk up stairs anymore.....falling asleep all of the time...SO TIRED.....by the time the doctors figured it out...I was so low (Thyroid level .003) not even funny...they said I could have went into a coma and never woke up!..so now I have a SUPER LOW THYROID....which for some reason they can not seem to get corrected to a normal level..I have no finger nails...brittle super dry hair....and lots of weight!! got up to 155..this is so not a pretty look for me....did I mention the doctors say I am only 5'5"..(somehow lost and inch) ??? I am now 46 yrs old....married 22 + yrs.. no children (miscarriages per Thyroid issues) and fat....and can not loose weight! I am currently trying to keep my calories under 1200 M-F.....and workout about 1 1/2 hours M-F.....weekends off...but have only lost a few lbs.....:(
so depressing...boy what I wouldn't give to have my High Thyroid levels again!!
I take 200 mg of Synthroid daily...per generic did not seem to work for me...but my levels are still low...also I have developed an LOW HEART rate.....???? My specialist said it was only 56....wow....I think it should be around 70???
That's my story...........If anyone has any advice or suggestions on what else to do, to loose weight...I would love to hear from you!!

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MJREIMERS's Photo MJREIMERS Posts: 7,529
8/20/16 9:50 P

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I am still struggling with my meds. I have been told that Synthoid is more effective than the generic.I go in a week from Monday for a blood draw and med recheck, so I'll discuss it with my doctor.

I have gained 5-8 lbs and my body shape has changed, and not for the better. It's frustrating, but I know others have much more severe medical problems. I'm sure many would love to take a pill to "fix" their health issues.

That's about it. Hanging in there and still counting my blessings.

~Mako~


LJRW170's Photo LJRW170 Posts: 434
8/19/16 2:48 P

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Not a big story. I didn't really have most of the symptoms of hypothyroidism, just the difficulty losing weight and infertility. My doctor who's trying to help me get pregnant just diagnosed my with hypothyroidism and put me on Liothyronine 2 weeks ago.

The only difference I'm noticing so far is that my moods are very stabilized. I used to take vitamin B's and St. John's Wort and Gingko Biloba to even them out because I dealt with depression pretty badly.

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SUSANSKI's Photo SUSANSKI Posts: 6,903
7/9/16 5:45 P

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What's MY story? Ohhh boy. If you read my blogs you'll know I have LOTS of stories, lol, but I'll just stick to my Hypo-Thyroidism one.

I was about 13 when I went to a 'well check up'. There were three of us at the same appointment. Big Sis, myself, and Little Sis...all needing checkups.
We all sat on the examining table, like the 3 Little Pigs, only all in a row! (and not ready to leave home!)
The doctor went down the row examining our necks, feeling for swelling. And he stopped at ME.
I was about 13 and around 77 lbs. (isn't that just cute? I have to LOSE more than that now.!)
I was admitted to the hospital to do some testing. ( thinking back, that seems strange.)
Then I was eventually sent to a Endocrinologist at another city's Children's Hospital.
I laugh because I always thought he was sooooooooooo TALL! And my mom would laugh at me and say, "NO, Susan, he WASN'T."
( I guess I needed to do some GROWING! As it turns out, I was 2 years behind in growth.)

So I began with 2 pills a day that first year (Synthroid) then adjusted to one a day.
Those were FUN days for me!
I had doctor appointments TWICE a year, which meant Mom and Dad would withdraw me from SCHOOOOOLLL for the day. It also meant that we were sure to stop at Walker's family restaurant, right next to the freeway, just Dad, Mom and Me (there were 5 girls in my family)
I am now 48 years old. I had gone on to have 9 children (my 10th was miscarried during a time of high stress).
(I'm soooo glad I was able to have children. I've heard of some women who couldn't, since with thyroid problems, your reproductive system is the first to go.

So far, all my children are healthy (ages 22-10)

My maternal grandmother had hypothyroidism, then me, then 3 of my sisters. My mother, who is a dialysis patient and has several health issues, just joined us last year at the age of 72.

I never was interested enough to care about researching all this.
I can say however, that I never really felt my symptoms disappeared: always tired, poor hearing, headaches.
Then a few years ago I HAD TO GO WITHOUT my meds for an entire year.
Boy! Was I ever surprised. BAD things happened to me then! I gained 30-40 pounds, my face hands and feet swelled up so horribly, I almost couldn't recognize myself. My joints hurt. If I pulled a muscle, it would take FOREVER to heal. I lost my voice. My throat swelled, making it very difficult to swallow.
It was BAD.
But I'm back on the meds and everything is getting back to normal. Never again will I doubt that my medicines were working for me.

When I first joined spark I weighed around 216ish. At my worst I briefly hit 250ish. I re-started Sparkpeople in late September of 2015 at 246 and I am down to 230.

I have found that committing to 10 minutes of cardio a day helped me develop the ENERGY my sluggish body needed.
I also have discovered that SWIMMING burns a GABILLION calories, and builds muscles all around. I have ALWAYS had trouble with muscle strength. I think I'm in the middle of a Breakthrough Moment, so stay tuned!
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But to rejoice:
I now have a bicep and I'm working on my deltoid (shoulder muscle). I am so proud of them, that I've given them a name.
The Bold....and The Beautiful!
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(My 10 year old daughter just named HERS: Muffy and Puffy. emoticon )

And that's my basic story. You can find me around the site talking about various issues with the others. Wailing here, bawling there, cheering for myself once in a while. I also write a Blog every single week on Mondays (or Tuesday morning).
So come visit me!

~Susan
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Edited by: SUSANSKI at: 7/9/2016 (17:50)



Life.
It's Worth Living.
It's Worth Giving.
Choose Life.


And we all lived happily ever after...
~Susan...ski





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SUSANSKI's Photo SUSANSKI Posts: 6,903
7/7/16 11:38 P

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Hello to old and new members!
I have found while visiting with one another that our HYPO-THYROID stories can be varied. I created this Topic so that we can have one place to share what we want to share about our basic experiences. This will help, when getting to know new members and making new friends, by not having to repeat ourselves several times. Now you can just point them to this thread and then they can go back to your other conversations and see your updates, your trials and errors, and your successes and suggestions.
I hope this aids us in getting to know one another!

So....what's YOUR story?
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Note: One post per person, please. If you need to add or correct, just click on Edit and off you go!

Thanks! and Can't wait to hear from everyone!

~Susan...ski
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Edited by: SUSANSKI at: 7/8/2016 (00:04)



Life.
It's Worth Living.
It's Worth Giving.
Choose Life.


And we all lived happily ever after...
~Susan...ski





 current weight: 236.0 
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