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K-RAE82's Photo K-RAE82 SparkPoints: (32,778)
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4/21/18 3:34 P

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I just learned about icing the neck. You ice the base of the skull right where the neck meets the head. You need to ice it 2-3 times a day for 15 minutes. It will help reduce pain and relax the shooting pains in the back. I'm excited to try it out and glad its just not another pill. If you try it let me know if it helped you too?

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GLADDER Posts: 9
1/10/18 7:05 P

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Can you bring a space heater or at least a heat pack to work? One of those microwavable gel packs placed where it will do the most good might make a difference. And dress in layers--just in case it actually gets warm at work.

We heat with wood, and our old house is barely insulated. There are plenty of "curled up in a fetal position" days here, too. Do what you can to get the blood flowing. Wiggle your toes. Walk if you can. (Yes, I know how hard it is to exercise on bad days. I'm 74. There are a lot of things to spark a flare up when you're 74.)

And if you have one problem area that always hurts, check out why. I had a bad back since my 2nd pregnancy. (The baby's 45!) I had back surgery in 2016, and got rid of the worst of my pain. Why didn't any of the docs suggest surgery sooner? Don't let this happen to you.
IF there is one major problem area that feeds your bodywide pain, do whatever it takes to manage that one bad pain.

And think warm, sunny days.

Bette

Edited by: GLADDER at: 1/10/2018 (19:08)
SDANLSON's Photo SDANLSON Posts: 1,218
1/5/18 3:22 A

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You might want to look at trying a Quell. I have had mine for a while now. Using mine for several hours of day seems to help with cold and emotionally (personally) stressful events that tend to make the pain worse than usual. I do know some people who wear them almost full time, but different individuals have different responses of course. If it works for you, you might even be able to back off of some of your meds a bit.

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WALKINGDEADFAN's Photo WALKINGDEADFAN SparkPoints: (4,280)
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1/2/18 12:24 P

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this horrible cold weather is making me insane. I must have spent hours in a fetal position in bed because i can barely stand to move at all today. my medication isn't helping and i have to be here at work. All i want to do is go home to bed. I really wish it wasn't so awful hard getting disability for fibromyalgia because i feel like i am getting worse every single year. Thanks for listening to me. I hope you all have a Happy New Year.

I.M.MAGIC's Photo I.M.MAGIC Posts: 13,342
11/5/17 1:20 A

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Yes, SDANLSON, we have as many joints in our feet as we do in our hands, and they can all hurt, get arthritis, etc. Never fun. Just keep moving and try some meditation with your exercise. Really focusing on where I am and what I am doing has been good for me...

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!
P.S. I looked up enthusiasm, and it says the root words mean God within... interesting...!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But I don't think you have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too!


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SDANLSON's Photo SDANLSON Posts: 1,218
11/4/17 2:12 A

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The local drop in temperature was enough to really set mine off. I have started using the quell again and it makes it so I can get started doing things more easily and lessens the pains in my neck, back, arm, leg, hand and foot joints. I rarely see mention of foot joints in articles, but there are quite a few of them and they can cause a fair bit of discomfort when first standing and starting to walk.

It seems I had Fibromyalgia signs many years before diagnosis. I guess they didn't diagnose it a lot in the 70s and 80s. I guess the med trials weren't easy before a number of the medications used in treatment were developed. I have never been trialed on a med I didn't start reacting to within a week, so I have to use other things.

Edited by: SDANLSON at: 11/4/2017 (02:15)
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SDANLSON's Photo SDANLSON Posts: 1,218
9/18/17 5:46 P

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Yes, I agree easy exercise helps. I have reacted to every med tried, so I am not using any for this, but I didn't see any mention of any one else having tried a Quell. It does seem to help some especially in high stress times (that worsens my signs) and cold weather. I use it if I have overdone it and worsened my discomfort too. In my case, it has seemed to help me if I wear it for a couple of hours once or twice a day. If I wear it too much it seems to cause an irritation in my case. I know several people, including my mother, who wear them almost full time for other problems, so it may just be a me factor. It might be worth a try for some of you. There is a manufacture's website and some other information on line if anyone is curious or interested.

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GRANDMAKARENG's Photo GRANDMAKARENG SparkPoints: (130,759)
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6/9/17 11:53 A

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I hope you get some relief. I am fortunate that I am retired but I sure remember the stress in my office as a social worker. I now work PRN in activities so just a few hours as needed. Lately, I have been needed more than my body wants to work.

I take many of the same meds. 100 mg Tramadol, 1200 mg gab, & trazadone at bedtime. I take elavil twice a day. I think it is an SNRI. I also take ativan as needed for anxiety.

I can get a massage for 40-50 in my town.

My faith keeps me going.

Ohio


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WALKINGDEADFAN's Photo WALKINGDEADFAN SparkPoints: (4,280)
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6/9/17 8:16 A

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We are currently trying tramadol 100 mg three times a day, nuerontin (gabapentin) four times a day, Prestiq (an SNRI) in the morning and trazadone at bedtime. and some Vistaril as needed for anxiety. and some of those meds are because i am under horrible stress, dealing with profound depression and anxiety right now and we are both (my rheumatologist and I) quite sure that my stress level and depression are really really causing the severity of this flare, the length of this flare and in fact the flare in the first place. But i sit in a cold office, in a cold building with a non stop roller coaster ride of frustration. The current regimen takes the edge off, but by about 3:30pm i am in agony and it stays that way until i can go to sleep at night. The deep tissue massage helps the most but i can't afford the $90 every time. emoticon

GRANDMAKARENG's Photo GRANDMAKARENG SparkPoints: (130,759)
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5/22/17 3:32 P

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It sure would be nice if insurance paid for some things that help ...like massage.

I am 70 years old & on several pain meds. I also take lots of supplements. The one supplement that I think helps me the most is FIBRALGIA. It is a mixture of magnesium & malic. The only other thing that helps with pain is a soak in the tub. ..but who wants to live in a tub of hot water.

The meds do help but I have had a weight gain & also feel groggy until about noon. I did not know that tramadol causes itching. Thanks for helping me figure out why I itch.

I will be following this topic.

Ohio


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SUSANSUSAN14's Photo SUSANSUSAN14 Posts: 325
5/22/17 11:53 A

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I find that exercise works the best, but it is a catch 22 approach. You can overdo this at times. I have found that Soma works the best for me and the tramadol only makes me itch and feel where I can't sleep. All of the other drugs for fibro causing my blood pressure to increase and it causes me to get very agitated and angry. I have recently developed sciatica and heel pain and that has cause my exercise to decline. I am in the process of having to break down and order a $300.00 weighted blanket and it is about to kill me to do this. I think insurance companies should help with this expense.

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I.M.MAGIC's Photo I.M.MAGIC Posts: 13,342
5/22/17 10:38 A

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Yes, mild exercise really is the only answer. I take pain meds daily, at the smallest dose I can, with an option to take more when I have "breakthrough" pain...But it really is "USE IT OR LOSE IT!"
Fibromyalgia "feeds" on inactivity AND on over-activity. You keep working for a balance between the two and every day the parameters change... Just do your best, meditate, work, do the best you can. And to quote "the Frey Life",
Don't forget to laugh every day.

Kathy emoticon emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!
P.S. I looked up enthusiasm, and it says the root words mean God within... interesting...!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But I don't think you have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too!


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CD8401147 Posts: 2,537
5/22/17 10:05 A

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For me I have found doing mild exercising works. The more the body is not in motion the more the pain worsens. I would suggest every 15 minutes to do mild stretching. I know at first if really does hurt, but once I did the stretching and mild exercises I did feel my pain lessening. I also talked to my doctor about seeing a physical therapist that knows the right movements for the pain. I had 6 sessions, that all my insurance would cover and have been using those exercises as often as possible. The pain meds help some put with the combination of the right meds and the exercise that I learned through my physical therapy really work. On good days my pain stays between 2-4 and on the bad days it can reach close to 10. But I still force myself to do at least 5 minutes of stretching so my body knows that is still in movement. After that I crawl into bed and have a nice cry.

WALKINGDEADFAN's Photo WALKINGDEADFAN SparkPoints: (4,280)
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5/22/17 9:43 A

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First off, i must apologize. I am sitting at my desk and i am in severe pain. My office is cold and i have the heater on. But my arms and legs and shoulders are aching so bad that it is all i can do to be here now.
I have tried so many things. I have tried holistic things: acupuncture, acupressure, essential oils, deep tissue massage, gluten free diet, vegan diet, every over the counter rub etc known to man kind.
I have tried the prescription route: lyrica (40 pound weight gain and every month the pain returned and i had to keep upping the dose to get some relief. Cymbalta: daily migraines at the lowest dose possible, savella : heart arythmia leading to ICU stay for a week, tramadol, it worked for a while ( i have arthritis as well and it seems that the arthritis pain is often a jumping board for the fibro pain, ibuprofen or celebrex (same as tramadol) tylenol 4, cyclobenzaprine,( muscle relaxer), nuerontin or gabapentin (same drug just one is generic).
The deep tissue massage is very painful at the time, but my masseuse and i have worked up to this level because it is truly the only thing that stops my pain. But it only lasts for a few days and then i am right back where i started. I simply cannot afford $100 a week on that.
I wake up and my pain is like a 2. I assume everyone over age 30 wakes up a 2. But then the time ticks by and my pain is now at an 8. It is impossible to ignore. It is literally making me shift in my seat at the desk and i keep trying to find a position that is better. And of course there isn't one. I just want to cry.
I feel so defeated. I want to be normal. I want my husband to understand that i am not well, i am not faking it, i am not lazy, i have nothing to offer him but love. I don't have the energy to do anything. I am so depressed some days that i really don't want to see people or be around people or do things for anyone.
Is there anything that really actually helps you? All of my friends on facebook have offered so many solutions. I swear no matter how crazy they sound, i have tried them all. Nothing works. I don't need the tylenol 4 i am sure, but I feel like if i didn't take it, i would be incapacitated and i have to work to have health insurance i can afford. I want to work. I love people, but i am just barely holding on today to something.
I could use any suggestions. Thank you emoticon

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